#44149 10-28-2004 11:16 PM | Joined: Sep 2004 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2004 Posts: 28 | I am so excited to pick Ken up at the Clinic today. Only six more weeks to go! This week went really well with the chemo and radiation, no nausea, eating a lot, and mostly just bored and eager to come home. The exciting part was when the lump in his neck actually started to shrink! His mask was looser yesterday, and the doctor could tell a difference, too. It made him feel like something was actually happening--quite a morale boost! I'm sure things will get harder as we progress, but right now, I am in a "one day at a time" mode, and looking forward to the weekend!
Sherry (Dolores is the name of my cat) Wife to Ken, starting chemo/radiation 10/25/04. Stage IV SCC of right tonsil, T2,N2A,MO
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#44150 10-29-2004 01:38 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Aug 2004 Posts: 217 | Sherry, I remember being so amazed that the tumors, one of which was at 6cm, visibly shrank after the first round of chemo! It DID do a lot to perk up spirits.
Do take advantage of this weekend - Eat lots of favorite things and do something FUN!
Love Nicki
Nicki, wife of Thomas dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#44151 10-29-2004 07:28 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sherry,
I am glad the first week went so well. I look forward to hearing more great news from you and Ken!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#44152 10-29-2004 12:36 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 153 | hey Sherry,
you are an angle for Ken. glad to hear the treatment is shrinking that tumor.
my black cat took naps with me on weekends and helped nurse me back. i wonder if dolores is doing the same for Ken. if so, he's got two angles.
cu, larryb | | |
#44153 10-29-2004 07:10 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Delores, some of us have had a rather dramatic response to treatment. A three week into treatment CT scan showed that my 6cm tumor had completely disappeared. I am also a right tonsil survivor.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#44154 10-30-2004 08:13 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Same Here Delores 9cm tumor just went away...like magic! Happy Days for you...enjoy. Love Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#44155 10-30-2004 11:29 AM | Joined: Sep 2004 Posts: 28 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2004 Posts: 28 | It's nice to know the chemo is working by seeing the tumor shrink, especially since today the side effects have kicked in big time. He has been unable to do anything except sleep since yesterday afternoon when he got home from the hospital. Nausea is ever-present but under control. No appetite, but he managed to eat a bowl of cereal and some peaches; his liquid intake is good, though. Mouth sores are starting to appear, too, so he uses the mouth rinse a lot. Does the extreme fatigue last long? He doesn't go in for another round of chemo for three weeks; I hope the effects of this round subside a bit before then.
Sherry (Dolores is the name of my cat) Wife to Ken, starting chemo/radiation 10/25/04. Stage IV SCC of right tonsil, T2,N2A,MO
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#44156 10-30-2004 03:25 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Sherry (AKA Delores ;-), I take it he's getting Cisplatin - that's usually a three week treatment protocol. It will get slowly better until the next Tx then he gets to start over. For me everything had a metallic taste and I had a chemical body odor for quite a while until that stuff was finally purged from my system. He MUST drink 2-3 liters of water daily to protect his kidneys from damage. My second round was much worse than the first. Much more nausea and synergystic effect with the radiation. Everyone is different though and his reactions may be much milder.
It's hard to say about the fatigue but it is a well known side effect of cancer treatment. It took me about a year before I was at 95%. The radiation is a bigger cause of fatigue than the chemo. Figure on a month of recovery for every week of radiation. Some folks here have worked through Tx - not me though.
I really don't think that the chemo is really doing much on it's own. It is an adjunct to the radiation which is the primary curative method. I would put my money on the radiation for shrinking those tumors.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#44157 10-30-2004 07:43 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 482 | Sherry, I had no bad results from the chemo treatment. I was on the every 21 day ciplatin chemo schedule, too, and went to the hospital for 2-4 days each time. I checked in on Thursday morning and they put me on high water drip, with anti-nausea just before chemo on Friday morning. Of course, rad treatment both days, as usual. They kept me on water drip on Saturday and discharged me on Sunday. That was the first treatment. The second treatment they got me out on Saturday and let me go on Friday after the third treatment. I couldn't wait to get out of the hospital. Probably should have hung around longer on the last chemo, though, as I didn't do quite as well as the first two. Bottom line is, as Gary said, we all react differently. Ken may be able to get through the next one easily. By the way, I forgot to mention that they put me to sleep with each chemo treatment, so I wasn't awake to see if I got nausious or not. By the time I woke up, it was all done. Will pray for you both as you progress through treatment.
Regards, Kirk Georgia Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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