#3226 08-08-2004 07:53 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Good Luck Helen!!!
You have been such a valuable member of the Oral Cancer Foundation. You will most likely have some bumps in the road ahead of you. Nothing you can't jump right over. I'll be praying for you Helen.
Your Friend, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#3227 08-08-2004 08:58 AM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Helen,
Somehow I KNEW that red wine was going to be making the trip to the hospital with you! Keep your spirits up!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#3228 08-08-2004 12:16 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Nice pun, Nancy!! Christine 
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#3229 08-08-2004 01:27 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Wishing YOU sunshine, Helen I'll be thinking of you here and looking forward to your posts when you are back home and strong enough to join in again. With love from Helen in Oz 
RHTonsil SCC Stage IV tx completed May 03
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#3230 08-08-2004 03:32 PM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 62 | Good Luck Helen!!!
My thoughts will be with you and hope you have a quick recovery.
David | | |
#3231 08-08-2004 03:37 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Helen,
While my family is singing Happy Birthday to me I will be thinking of you. I'm confident you will breeze through this.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3232 08-09-2004 07:29 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Helen,
I will certainly be praying for you and His intervention in guiding your medical treatment to give you every opportunity for the speediest recovery. I am so glad you will be hiding the red wine because I thought I would have to sneak over the pond to bring some to you!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3233 08-09-2004 07:39 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Helen, I will be thinking of you and praying for you....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#3234 08-09-2004 03:46 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Helen, I will do everything I am able to do to see you through this procedure and to healing and good health after the doctors are done. Take care and tell your husband he will have to keep us informed! (I know that won't be easy but he'll find a way) 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#3235 08-10-2004 04:14 AM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 117 | Helen,
I will be thinking about you and praying for you. I'm sending you sunshine, love and hugs!
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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