#21732 12-16-2006 05:34 PM | Joined: Oct 2006 Posts: 8 Member | OP  Member
Joined: Oct 2006 Posts: 8 | I have been lurking since my husband was diagnosed in late September and felt like I should finally introduce myself.
My husband was diagnosed with Stage 1 BOT SCC in late September. He has 7 of 35 IMRT radiation to go. We will be so happy to get this over with. It has been exhausting. These boards have helped me tremendously.
My husband had been having a sharp pain in his neck for several months when he first saw a dr. The dr. did not find anything, pronounced him healthy. He then found an ENT (who is wonderful, btw). Despite 2 CTs, an ultrasound, and physical exams she also found nothing. My husband kept insisting that he was not a hypochondriac and that he really needed to find out why he had this pain in his neck that was not going away. She gave him the option of a PET scan or biopsy. She reccommended the PET scan since it is less invasive. It came back with a suspicious area. She then biopsied and it came back as cancer on the bot.
Everyone is somewhat shocked that we caught it so early. Thank goodness we did.
He is being treated at Johns Hopkins. He has all the usual side effects. He got hit like a train the third week in. He went from very little side effects to all of them and immense pain in about two days. He has a morphine pump which causes its own issues. It is always something around here!
Wife/CG to husband SCC BOT Stage 1 N0M0. Finished treatment (IMRT x 35) 12/26/06. Doing great now!
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#21733 12-17-2006 06:39 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lisa,
Both of you hang in there. You have a ways to go and it will seem like forever but it will get better around the 2nd to 3rd week after RT ends. I assume he is getting IMRT. What about chemo? There are many things that may help him and you through this dark tunnel so don't hestitate to ask anything and everything.
We are all here to help in anyway we can.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21734 12-19-2006 04:27 PM | Joined: Dec 2006 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 34 | Lisa , I too was diagnosed with stage 1 scc and I had 28 treatments of radiation not IMRT but regular sunburn type. I still have no voice but I made it! I went form no side effect to begging for mercy after the 4th week. It has been 3 1/2 weeks since my last treatment. I hope your husband gets better soon! You are in good hands! Tony
45yrs young SCC - TVC - 28 rad trx- future? finished on nov 28,2006
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#21735 12-19-2006 07:35 PM | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | Glad you are no longer lurking
this is a good place to be open about anything
If not for this place I don't want to think how much harder this road would have been to walk soo anything anytime ask any thing even if you think it is silly...you can scream tooo.... we have all been there done that WELCOME
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
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