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| Joined: Mar 2018 Posts: 34 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2018 Posts: 34 | Hi all!
So tonight I decided I needed to get back on my fluoride trays since I stopped using them when my mouth pain got too bad. I am almost 2 months out from rads and chemo.
So I put them in but could only leave them in for about 6 minutes as my mouth started tingling and bothering me. Have any of you had this happen? Have others stopped the trays for a while post rads? Any suggestions?
Thanks! Linda
Stage 3 SCC of tongue/floor of mouth. Originally Stage T1N0M0 but one pesky lymph node discovered in neck after resection. Now T1N1M0 Surgery 2/16/18 at UAB. 30 Proton Therapy Treatments Cisplatin Chemotherapy
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I cant remember going thru anything like that, Linda. After rads most patients have a very sensitive mouth for months. The fluoride trays are very important to use. Rads does quite a number on your teeth! I ended up losing my teeth after going thru rads. My teeth shifted and became so loose I was afraid they would fall right out when I tried to eat something.
You may find relief if you try to first numb your mouth with magic mouthwash and then try to use the fluoride trays again. If you dont have magic mouthwash (MM), ask your doc for a prescription for it. There are several versions available. I had a mix of maalox, benedryl and lidocain and it worked great for me. Make sure not to swallow it!!! Take about 2 teaspoons full of MM and swish it around in yoru mouth for at least 30 seconds and spit it out. Your mouth should be numbed for a good 15 minutes or more.
Hope this help!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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