| | Joined: Jul 2014 Posts: 29 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | Hi Y'all, I am very new here. We have JUST begun our journey 3 days ago and I am trying to plan ahead. We may have the option of having my husband treated at MD Anderson. Ideally, that IS what we want. My concern (fear) if we do is affording somewhere to stay. At BAMC in San Antonio there is the Fisher House for us (an Army provided home). We will, of course, have the regular bills associated with our home, even when gone, and the added expense of affording someone to tend to our horses and chickens, so renting a place or getting a hotel, however inexpensive, is definitely NOT in the budget unless there is some kind of assistance I have yet to learn about. Should we even bother trying for MD Anderson with such a concern or just stick with BAMC where we know we'll have lodging provided? What would you do? What are your thoughts? Thanks, Y'all!
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
| | | | | Joined: Jul 2014 Posts: 29 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | So i kept looking and reading in here and thru various links of resources from y'all amazing folks (THANK YOU!) i found there is a Fisher House in Houston! And various other options! Yay! Big relief!
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Also MDA should have a Social worker that may be able to provide or find assistance. There are lots of non profits out there to help cancer patients, you just need to find a person who knows which ones can help you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you are in the Houston area, in October there will be a walk. Not sure if your husband will feel up to attending but maybe you could go? This year I will be at the Houston event and would love to meet other members. If you are closer to San Antonio, we also have a walk there every April hosted by my dear friend and fellow survivor, Elizabeth. OCF Houston walk
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2014 Posts: 29 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | We are up at Ft Hood, but a drive down there is very doable! I also just happily learned last night that my Sister has friends in Houston, so no matter what we would have a place to stay for treatment! Much relief on that front!
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi JK - good news about the place to stay. I just sent you a PM, look for blinking envelope at top of page.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
