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#178427 03-18-2014 04:37 PM
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So, I got scoped poked and prodded on Feb 18th and got the all clear. I had a bit of a heart scare as "scanxiety" reared it's ugly head and sent me to the ER with chest pain. After a full cardiac workup, I've been given that all clear there as well.

Overall, I've been doing Ok at almost a year out of treatment. While I have quite a few of the usual side effects, I'm managing well overall.

Today, I noticed a hard painless swollen node under my right ear just at the jawline. It's visible just looking in the mirror. I'd estimate it to be at least a centimeter or more right now. Obviously I'm kinda freaking as this is how it all started in August of 2012. I don't poke and prod myself at all so I didn't notice it before and it's only been a month since my last check up. Could the beast have come back that fast and strong?

I sent a note off to my team and I have an appointment with my dentist and GP next week. I don't know what I'm even asking but damn.... with the stats and me being a year out?....

Positive thoughts and prayers

"T"

Last edited by fishmanpa; 03-18-2014 05:26 PM.

57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
fishmanpa #178436 03-18-2014 05:35 PM
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T, I so understand your panic! Cancer is real for us, not an abstraction. I know it's easy to say and hard to do, but take a deep breath and gIve all the possiblities equal play. It could be a swollen node from a cold or sinus infection or plain old scar tissue, to name just two.

Justifying optimism: You were checked out just a month ago. You've been examined regularly. Your treatment was comprehensive -- surgery, chemo, rads -- you fired all the bullets and then threw the gun at it. You were treated at a top facility. And your HPV+ variety of tonsil cancer has proven highly responsive to exactly the regimen you followed.

Of course you need to have this bump checked out, but the odds are very much in your favor. My thoughts are with you, praying for good news --

Lynn


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
fishmanpa #178443 03-18-2014 06:34 PM
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Well that's a bugger. I would be phoning your team to be seen ASAP.
That's the only way to find out what's going on and to relieve your anxiety.
Take a deep breath. Reread what Lynn has written
Thinking of you,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
fishmanpa #178454 03-18-2014 10:50 PM
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Mr T,

Sorry for new concerns cropping up. There are too many "what-ifs" to really play them all out. Keep busy and let the doctors do the analytical work. Enjoy every day as much as you can. As far as you know, it has not come back until they can prove it.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
fishmanpa #178483 03-19-2014 08:51 AM
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I'm going to second Tammy's response - call your team NOW.

It could be an infection or a cold or something innocuous. But do not wait, you need to have peace of mind asap, simple as that. Call, tell them you're freaking out, and need to see the dr. ASAP. I'm not a fan of FNAs but they may do one and if they do then you will have to wait for the results. If that is the case then you'll be waiting even longer to find out what's up, if you wait to see your gp etc... call now. hugs. Hoping it's nothing.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #178485 03-19-2014 10:40 AM
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I have an appointment with my ENT/Surgeon Monday at Johns Hopkins.

Please keep me in your thoughts and prayers

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
fishmanpa #178489 03-19-2014 12:05 PM
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I will absolutely. I'm hoping it's nothing but best to find out asap... hugs.

Last edited by Cheryld; 03-19-2014 12:05 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
fishmanpa #178492 03-19-2014 01:18 PM
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Posts: 104
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Good Luck FishManPa!


Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
fishmanpa #178500 03-19-2014 03:26 PM
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You did the right thing by consulting your team, and anything, like cancer, is possible even in a short time, but it can be many other things also. Good luck with everything.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #178580 03-22-2014 09:22 AM
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It seems that this situation may be indicative of something systemic in nature. The gland on my neck was joined by others under my arm and groin and I've had a maddening persistent itching over my entire body since this started. There are bruises and blotchy red rashes where I've been scratching (I've been awakened every night since this started because of itching and scratching in my sleep). I awoke today an it seems the swelling is beginning to abate a bit. The itching is barely tolerable even with anti-itch cream and Benedryl but it does help a little.

I see my ENT Monday and we'll see what's going on.

Positive thoughts


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
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