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sanmc #171084 09-15-2013 07:24 AM
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It is Jevity and manufactured by Abbott Labs. I have been on Jevity as a supplement through my tube from week 2 of treatment. My tube should be out in early October so I congratulate you on losing yours. That has to offer a sense of freedom. Eating is a challenge but as you can understand from all of the postings many options exist.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
sanmc #171086 09-15-2013 08:06 AM
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"OCF Canuck"
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Yah tubeless! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
sanmc #171448 09-22-2013 06:32 PM
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Posts: 24
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Thanks everyone! Now I have a new problem. I've been crushing my meds and taking them through the tube. Now, I'm having to try swallowing all these pills. I have a tendency to get choked on them. Some because of the size and some because they are not coated. I decided to try crushing them and adding a little water to swallow that way. Something in the meds burned my throat really badly, also very bitter. Guess I'll go back to trying to swallow them whole. Does anyone have any suggestions about this? So proud to be rid of the tube and I want to get this part of the situation easier to manage. Thanks in advance for your help and encouragement!!


Sandra
5/15/12 Diagnosed with SSC
6/20/12 Surgery-Hard/soft palate with RND, trach and PEG, teeth taken, Age 51
8/20/12 PET scan showed cancer had reoccurred
9/4/12 Began Chemo and Radiation
1X cisplatin 2X carboplatin 35 radiation
5/28/13 Latest scans---Cancer free
12/2013 Still Cancer Free MO wants no more CT scans
(not sure how I feel about that)

Blessed and Very Much So
sanmc #171454 09-23-2013 02:30 AM
Joined: Nov 2006
Posts: 2,671
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Sandra - Don't know if this could help, but I've seen others here mention trying to get the meds in liquid form to make them easier to get down. Maybe ask your doctor about this?


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



sanmc #171456 09-23-2013 04:34 AM
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Administrator, Director of Patient Support Services
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I agree, liquid meds would do the trick. Another suggestion is to crush ed and add them into a spoon of yogurt or applesauce. That should mask the taste and burning.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
sanmc #171459 09-23-2013 06:11 AM
Joined: Sep 2012
Posts: 381
"OCF Canuck"
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The trick I used was to coat the pills in something slippery - a little bit of butter or some olive oil works - it avoids them starting to dissolve and stick. Coat it and stick the pill back as far as you can, then take a sip of water. It sounds gross but you can't taste it anyway and it slips right down.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
sanmc #171466 09-23-2013 07:18 AM
Joined: Dec 2010
Posts: 5,260
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"OCF Canuck"
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Yup even a gulp of a thicker liquid, I take my pills (vitamins) with a smoothie or almond milk. I have no problems. smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
sanmc #171551 09-25-2013 07:47 AM
Joined: Jul 2013
Posts: 24
sanmc Offline OP
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Thanks! Good things to try!


Sandra
5/15/12 Diagnosed with SSC
6/20/12 Surgery-Hard/soft palate with RND, trach and PEG, teeth taken, Age 51
8/20/12 PET scan showed cancer had reoccurred
9/4/12 Began Chemo and Radiation
1X cisplatin 2X carboplatin 35 radiation
5/28/13 Latest scans---Cancer free
12/2013 Still Cancer Free MO wants no more CT scans
(not sure how I feel about that)

Blessed and Very Much So
sanmc #171622 09-26-2013 10:23 AM
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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Posts: 945
Hi, Sandra
some pills are not supposed to be crushed or even split due to an enteric coating - some NSAIDs (like my RA med, Lodine) is like this. Check the label or ask the pharmacist. These would be a good candidate for the slippery coating trick.

For the pills that can be crushed, you can get an actual pill crusher to make it easier.

Best of luck and congrat's on going tubeless!

Maria

Last edited by Maria; 09-26-2013 10:23 AM. Reason: spelling

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
sanmc #171698 09-28-2013 05:27 PM
Joined: Aug 2013
Posts: 144
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What I am doing as far as getting my pills down is 1. Take the smaller pills first.(this in my mind kind of primes my throat for the larger ones)2. Don't over think it.(don't just do it but don't dwell on them getting stuck). 3. Don't panic if a pill doesn't get all the way down.( In the case of a stuck pill try more water first, if still in there have a small bite of food. I know that it can sound scary to put more on top of a pill that is stuck. but take the bite of food and follow with some more water.(or ensure for thickness). This has always worked for me and some of my HIV pills are huge. The worst you can do is panic, or try to get the pill back into your mouth from your throat. The food part is directly from my MD. Happy swallowing. And congratulations on getting the tube out! Shawn.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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