Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
#161221 02-03-2013 09:31 AM
Joined: Sep 2012
Posts: 381
tina77 Offline OP
"OCF Canuck"
Platinum Member (300+ posts)
OP Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
Hi all,

I thought I would pass on a treatment I just started to improve the mobility, and decrease tightness in my neck. It is a combined treatment with 2 different types of lasers, and the general gist is that the laser makes tiny holes in the scar tissue to allow new healthy collagen to form (like aerating your lawn).

As it was explained to me, a scar forms because it is the body's immediate reaction to trauma, and the first instinct is to close the wound immediately. As such, the collagen forms thick bundles. This has the result of pulling skin tighter, which accounts for the tightness in the incision and surrounding areas.

In my case (not sure everyone else has this), I feel like I am wearing a choke collar all the time, which in turn limits my mobility. In addition, it pulls my other skin, so that the left side of my mouth and chin are pulled down. It's noticible when I smile, and it looks a bit like I have had a stroke. I also note that in my stretching excercises, I can feel the pull on the "new" tongue, as all is connected to the floor of the mouth.

The laser is called Ultra Pulse (SCAARS - Synergistic Coagulation and Ablation for Advanced Resurfacing - yep, it's a mouthful). It takes numerous treatments, and can be done in 3-6 month intervals.

The side benefit, is that it is also supposed to reduce the appearance of the scarring. Nice, but not my main focus.

This does not replace PT, it's an adjunct.

I have only had my first treatment, but I will let you all know the results as it goes along.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
tina77 #161223 02-03-2013 12:45 PM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
That sounds awesome, TIna! I continue to be amazed at all that one learns just by coming to this site. Thanks for sharing.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



tina77 #161241 02-04-2013 10:25 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Yes let me know I would be very interested. Works on a similar principle to acupuncture as that is how my naturopath used to work, he'd stab me in the scar tissue, to help bring in blood flow. Good luck let us know if it works.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
tina77 #162012 02-25-2013 07:33 AM
Joined: Sep 2012
Posts: 381
tina77 Offline OP
"OCF Canuck"
Platinum Member (300+ posts)
OP Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
Ok, so here is the update on the laser...

The treatements are 3-6 months apart, but are combined with 2 lasers (one can be more often, but generally they are done together), and generally take a total of 2 years.

After the first laser treatment on the neck scars, I was concerned because everything seemed to get tighter, but meeting with my surgeon, he advised that this was likely to to nerve stimulation.

There has been a reduction in the raised portions of the scars (they were very pronounced especially on one side of my neck), and the redness has faded. The "cosmetic" side is a perk, but not what I am really interested in.

The mobility has not yet improved, but I've only been once so that is to be expected.

My next session is in April, and I'm hoping to have more to report then.



Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
tina77 #162139 02-27-2013 06:33 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Interesting so it's meant to break up scar tissue!?


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
tina77 #164837 05-12-2013 11:36 PM
Joined: Sep 2012
Posts: 381
tina77 Offline OP
"OCF Canuck"
Platinum Member (300+ posts)
OP Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
More updates on the laser. I am seeing some increased mobility in my neck. The "choking" sensattion is reducing and feels more like tightness now. It's hard to say whether this is simply due to the passage of time, or the laser itself.

The scarring is definitely less noticable and less raised.

Yes, Cheryl, the idea is to punch microscopic holes in the scar tissue to break it down and let new, healthy, "non-trauma" collagen form.

I am having the double laser in mid June, so I will post a follow up then.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
tina77 #164849 05-13-2013 06:10 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Yes it is the same principle as acupuncture..
It seemed to help me smile good luck hope it keeps helping.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
tina77 #164859 05-13-2013 05:42 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I had such a horrible experience with the laser. After the first treatment is was as if I had a reverse whiplash with the pain in the front of the neck. I couldn't get up off the floor because I couldn't raise my head. It lasted for several days. They think a nerve was compromised by the laser. I already had significant fibrosis and atrophy of my SCM muscle in the left side which is probably what happened.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
tina77 #164866 05-13-2013 08:53 PM
Joined: Sep 2012
Posts: 381
tina77 Offline OP
"OCF Canuck"
Platinum Member (300+ posts)
OP Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
Uptown, this is pretty new. Was it perhaps a different type of laser? (see my first post which identifies the type).

I had no pain from this, except a mild discomfort when the laser was operating.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
tina77 #164869 05-13-2013 09:08 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
It was the ultrpulse plus cold laser with electristim. It was about 6 months ago. I had lost a OT of muscle by then and had a lot of neuropathy issues.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Page 1 of 3 1 2 3

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5