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#153340 08-16-2012 03:37 PM
Joined: Jul 2012
Posts: 50
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Supporting Member (50+ posts)

Joined: Jul 2012
Posts: 50
Could you physically see your reoccurrence? How far out from treatment were you?


Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
Winteriscoming #153347 08-16-2012 07:10 PM
Joined: Jun 2007
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Think of a recurrence as a cancer diagnosis, just it being a second one. I could see my 2nd tumor but for my third round it was not visible.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Winteriscoming #153358 08-17-2012 07:28 AM
Joined: Mar 2008
Posts: 3,082
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Hey WIC

What a coincidence. We are both seeing our oncologists today, the 17th to check out a pain in our tongues. I have a little bump that bled about a week ago and still hurts.
I see from your other posts that you are "scared to death" about it being a possible recurrence. That's is perfectly natural.

I've gotten blase about tongue pain since all of my "scares" the last years involving tongue pain or bumps turned out innocuous. I had no symptoms except excessive drooling starting up and some difficulty swallowing when my doctor felt "something troubling". Zero tongue pain at that time But then my tumor was base of tongue which has no pain nerves. .
If my wife had not laid down the law to me last night that I absolutely had to see my doctor today, I would have just waited until the week after next when my regular 3 month appointment is. She is just frantic so I can better appreciate just how worried you are about this.

Back to your question: I could not see either one of my cancer tumors either time - nor could my doctors since it was inside the base of my tongue. But even though my doctor could not see the recurrence, she was able to feel under my tongue and detect trouble. Of course I had to have a biopsy done to be sure, but my doctor told me right away that she thought the cancer had most likely come back.

I'm not expecting any bad news today, but the fear never goes away. I hope you have excellent news today.
Charm

Last edited by Charm2017; 08-17-2012 07:35 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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