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#147867 - 04/06/12 05:32 PM Re: Memories... [Re: CMMoore]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8249
Loc: PA
Hope you are able to enjoy yourself over the weekend. You were very smart to make lots of plans. Remember the good memories and know that Matt is smiling down on you.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#147879 - 04/06/12 08:36 PM Re: Memories... [Re: CMMoore]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
Happy Anniversary Honey!! Yes, very glad you are getting out with your girlfriends. Relax and have a good time.
Thinking of you daily. Wish we could all have a party night together!
Love,
Kathy
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

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#148049 - 04/10/12 05:13 AM Re: Memories... [Re: CMMoore]
Sandy177 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/17/11
Posts: 571
Loc: California
Love you, girl!

I agree with Wanda. Sometimes when we need them the most, they show up. I was cleaning out my mom's stuff and setting stuff aside for Goodwill. I was so sad. I reached in a coat pocket and found a tissue with a perfect lipstick lip print on it. It was like getting one more kiss from my mom.

Matt loved you tremendously. I am so happy that you have things he wrote and said to reassure you that you were loved and appreciated. Too many people let those words go unsaid and unwritten. That's tragic.

Sending hugs,
Sandy
xoxox

_________________________
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.

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#148050 - 04/10/12 05:47 AM Re: Memories... [Re: KP5]
CMMoore Offline
Gold Member (200+ posts)

Registered: 07/01/09
Posts: 280
Loc: MO, USA
Friday night I kept very busy, saw an awesome band, drank a LOT and hand fun. Saturday got 4 inches chopped off my hair for the summer. Went for a long peaceful drive through the country and found a CUTE property with 5 acres. It's on a dirt road, but not far from a highway. There is a creek just across the road. A huge garage/shop where my son and I could build a hot rod or start making demo derby cars (we have several fun ideas to keep us busy) Trees are everywhere so lots of rock gardens hammocks and little oasis opportunities to be created.
Would be such a nice place to heal.
When I mentioned it to my brother, he laughed really big and then showed me on a map that the property he wants to buy is about a mile due north across the creek from it. The kids would all certainly love that!
As much as I love the city and all that there is to do, I am just a country girl at heart.

Kathy, I agree, it would be SO nice to meet you all!

Anyway, just touching base.

Love,
Christine
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.

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#148052 - 04/10/12 06:48 AM Re: Memories... [Re: CMMoore]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
Christine, thank you for sharing my dear friend. I love reading these updates, you've been on my heart.

Love you lady

Eric
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#148059 - 04/10/12 06:38 PM Re: Memories... [Re: EricS]
Maria Online   content
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 859
Loc: Ohio
Christine,
our three acres attach us to the earth and the turning of the seasons; I hope you are able to manage your own patch of green (and the fabulous garage). Be sure to budget enough for the equipment to manage your property so it will be a joy and not overwhelming! Love and best wishes.
Maria
_________________________
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

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#148060 - 04/10/12 07:28 PM Re: Memories... [Re: Maria]
zengalib Offline
Platinum Member (300+ posts)

Registered: 11/30/09
Posts: 481
Loc: NW Ohio
Christine,
Thank you for continuing to share with us. Buying the land sounds like a really neat idea. I'll bet Matt is smiling down on you right now.
_________________________
Female, nonsmoker, 68, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, looking at a very invasive surgery which will involve lifestyle changes.

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#148067 - 04/10/12 11:18 PM Re: Memories... [Re: zengalib]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 8249
Loc: PA
Christine, its nice to read your positive updates. Glad you enjoyed yourself over the weekend. Buying the property would be a good fresh start for your family. Hope it all works out for you.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

Top
#148077 - 04/11/12 05:25 AM Re: Memories... [Re: ChristineB]
CMMoore Offline
Gold Member (200+ posts)

Registered: 07/01/09
Posts: 280
Loc: MO, USA
Glad you all don't mind the continued updates... I am totally addicted to talking to you all :P
_________________________
CG to my husband, Matt. Dx June 2009 Stage IV Oropharengeal SCC right tonsil primary with distant metastases. Rad to neck- Surgeries to lungs- Every avail chemo - ran out of options Jan 2012, called for hospice help Feb 2012, at rest March 19, 2012.

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#148081 - 04/11/12 09:08 AM Re: Memories... [Re: CMMoore]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2563
Loc: TN
Your updates are a wonderful inspiration to everyone here. It's great to see that there is a beautiful life possible after coming though the dark tunnel of the big "C".
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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