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#148014 - 04/09/12 02:04 PM Ear Pain again  
Joined: Mar 2011
Posts: 126
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 126
Portland Maine
So I'm starting to feel the same ear pain when I yawn that I used to get. It has me worried. I'm do for a scan at MHG anyway and will be going in the next week probably but I was wondering if anyone had any input concering post TX ear pain.
Thanks

Will


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148015 - 04/09/12 02:29 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
I sometimes get ear pain... Not all the time - if it's continuous have it looked at but rads causes fibrosis of the muscles, etc. so there are ocassionally some tender area. Ear paini find sometimes happens when I drink something, I think my swallow is off and it sometimes backwashes into my ear canal... Or you may just have an ear infection... Definitely have it checked out. Hugs - hopefully its nothing.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148017 - 04/09/12 02:33 PM Re: Ear Pain again [Re: Cheryld]  
Joined: Mar 2011
Posts: 126
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 126
Portland Maine
I love you very much Cheryl and....your hair cut rocks!


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148021 - 04/09/12 05:30 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
smile it's my post rad hair!,, thanks! AnneO posted to someone else in a post just below yours also about ear pain - she was talking about TMJ read her post - it also is relevant! Hugs and keep on trucking!l you'll get through it. I have an appointment with my SO weekday..
Hoping for an all clear... smile for both of us!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148035 - 04/09/12 09:52 PM Re: Ear Pain again [Re: Cheryld]  
Joined: Jun 2007
Posts: 9,651
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,651
PA
Hope it turns out to be nothing serious, Will. I will be watching for your update saying you are good for another 6 months smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148074 - 04/11/12 03:57 AM Re: Ear Pain again [Re: ChristineB]  
Joined: Mar 2011
Posts: 126
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 126
Portland Maine
Thanks Christine, I'm actually really worried about this. Getting strange feelings in throat and ear similar to what I had before my diagnosis. making a CT apt. tomorrow.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148096 - 04/11/12 03:17 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Hi there... I am keeping my fingers crossed this is a side effect and nothing more... hugs dear... and god bless.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148495 - 04/19/12 01:06 PM Re: Ear Pain again [Re: Cheryld]  
Joined: Mar 2011
Posts: 126
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 126
Portland Maine
CT scan yesterday. Results tomorrow I'm guessing. I have a bad feeling. Headaches, ear pain, all the stuff I had prior to tx.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148501 - 04/19/12 04:34 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Apr 2012
Posts: 10
ilyse Offline
Member
ilyse  Offline
Member

Joined: Apr 2012
Posts: 10
california
MaineWill,

Good luck with your scan. I have been there with the earpain. I pray it is nothing. I know the feeling. my last scan was not clear due to radiation. Next scan May 4th. Waiting is the hardest part. Again my thoughts are with you.























Ilyse
46 non smoker non drinker.
SCC stage 2 in 1999 and 2010.
Recurrence 2011. Stage 4. Modified neck, thyroid cancer found. 7 weeks IMRT/Chemo cisplatin. Aug - Sept 2011.
2012 shwanna tumor on right auditory nerve. Not Cancerous only 20% removed. Wll do Gamma
knife.

#148504 - 04/19/12 04:50 PM Re: Ear Pain again [Re: ilyse]  
Joined: Jun 2007
Posts: 9,651
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,651
PA
Sorry to hear you are having a problem. Please dont panic yet! Scar tissue can be a tricky thing and sure play some tricks on you making you think something is alot more serious than it is. Hope you can find some relief very soon. Please check back with your results no matter what they are. You have your OCF pals in your corner!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#148529 - 04/19/12 11:03 PM Re: Ear Pain again [Re: ChristineB]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Fingers crossed its good news.l. Don't Give in to negativity.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148557 - 04/20/12 01:08 PM Re: Ear Pain again [Re: ChristineB]  
Joined: Mar 2011
Posts: 126
MaineWill Offline
Senior Member (100+ posts)
MaineWill  Offline
Senior Member (100+ posts)

Joined: Mar 2011
Posts: 126
Portland Maine
SCAN CLEAR !!!!! Doc said they were very readable and clear beyond a doubt. Thanks to everyone who truely is in my corner. You were right Christine...doc said scaring and radiation can cause all kinds of feelings. Phew....what a day!


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
#148559 - 04/20/12 01:53 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Aug 2011
Posts: 78
sallyanne Offline
Supporting Member (50+ posts)
sallyanne  Offline
Supporting Member (50+ posts)

Joined: Aug 2011
Posts: 78
New York, NY
Congratulations!! The damage caused from treatment and these "new normals" are going to take some getting used to.
Very happy to hear your great news!!


Sally, 38 years old
T1N0M0 Left Tongue Lesion, Moderately Differentiated
10 + year history Leukoplakia, Mild Dysplasia before cancer diagnosis 8/2011
Scheduled Partial Glossectomy & Neck Dissection 9-17-11
#148562 - 04/20/12 02:53 PM Re: Ear Pain again [Re: MaineWill]  
Joined: Apr 2012
Posts: 10
ilyse Offline
Member
ilyse  Offline
Member

Joined: Apr 2012
Posts: 10
california
Will,
So happy to fear the good news.


ilyse


Ilyse
46 non smoker non drinker.
SCC stage 2 in 1999 and 2010.
Recurrence 2011. Stage 4. Modified neck, thyroid cancer found. 7 weeks IMRT/Chemo cisplatin. Aug - Sept 2011.
2012 shwanna tumor on right auditory nerve. Not Cancerous only 20% removed. Wll do Gamma
knife.

#148563 - 04/20/12 03:01 PM Re: Ear Pain again [Re: ilyse]  
Joined: Jul 2011
Posts: 945
Maria Offline
"Above & Beyond" Member (500+ posts)
Maria  Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Ohio
"doc said scaring and radiation can cause all kinds of feelings"

Truer words were never spoken!!!

Congrats on the great news, and have a fantastic weekend.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
#148570 - 04/20/12 04:26 PM Re: Ear Pain again [Re: Maria]  
Joined: Dec 2010
Posts: 5,260
Cheryld Offline
"OCF Canuck"
Cheryld  Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Toronto canada
Yipeeeeeee!!! I knew it smile so glad you're doing good!!! Now get on with it times a wasting' smile seriously - I know it's hard not to have hose moments now and then... But - a clear scan always puts them in perspective! Woot!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
#148578 - 04/20/12 06:50 PM Re: Ear Pain again [Re: Maria]  
Joined: Jun 2007
Posts: 9,651
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 9,651
PA
Thats excellent news, Will!!!! Ive been thinking of you and hoping/praying all was ok. You do not want to go thru it again. Go celebrate!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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