#148014 - 04/09/12 07:04 AM
Ear Pain again
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Senior Member (100+ posts)
Registered: 03/01/11
Posts: 124
Loc: Portland Maine
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So I'm starting to feel the same ear pain when I yawn that I used to get. It has me worried. I'm do for a scan at MHG anyway and will be going in the next week probably but I was wondering if anyone had any input concering post TX ear pain.
Thanks
Will
_________________________
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
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#148015 - 04/09/12 07:29 AM
Re: Ear Pain again
[Re: MaineWill]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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I sometimes get ear pain... Not all the time - if it's continuous have it looked at but rads causes fibrosis of the muscles, etc. so there are ocassionally some tender area. Ear paini find sometimes happens when I drink something, I think my swallow is off and it sometimes backwashes into my ear canal... Or you may just have an ear infection... Definitely have it checked out. Hugs - hopefully its nothing.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148017 - 04/09/12 07:33 AM
Re: Ear Pain again
[Re: Cheryld]
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Senior Member (100+ posts)
Registered: 03/01/11
Posts: 124
Loc: Portland Maine
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I love you very much Cheryl and....your hair cut rocks!
_________________________
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
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#148021 - 04/09/12 10:30 AM
Re: Ear Pain again
[Re: MaineWill]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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 it's my post rad hair!,, thanks! AnneO posted to someone else in a post just below yours also about ear pain - she was talking about TMJ read her post - it also is relevant! Hugs and keep on trucking!l you'll get through it. I have an appointment with my SO weekday.. Hoping for an all clear... for both of us!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148035 - 04/09/12 02:52 PM
Re: Ear Pain again
[Re: Cheryld]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6712
Loc: PA
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Hope it turns out to be nothing serious, Will. I will be watching for your update saying you are good for another 6 months
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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#148074 - 04/10/12 08:57 PM
Re: Ear Pain again
[Re: ChristineB]
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Senior Member (100+ posts)
Registered: 03/01/11
Posts: 124
Loc: Portland Maine
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Thanks Christine, I'm actually really worried about this. Getting strange feelings in throat and ear similar to what I had before my diagnosis. making a CT apt. tomorrow.
_________________________
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
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#148096 - 04/11/12 08:17 AM
Re: Ear Pain again
[Re: MaineWill]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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Hi there... I am keeping my fingers crossed this is a side effect and nothing more... hugs dear... and god bless.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148495 - 04/19/12 06:06 AM
Re: Ear Pain again
[Re: Cheryld]
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Senior Member (100+ posts)
Registered: 03/01/11
Posts: 124
Loc: Portland Maine
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CT scan yesterday. Results tomorrow I'm guessing. I have a bad feeling. Headaches, ear pain, all the stuff I had prior to tx.
_________________________
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
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Top
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#148501 - 04/19/12 09:34 AM
Re: Ear Pain again
[Re: MaineWill]
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Member
Registered: 04/17/12
Posts: 10
Loc: california
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MaineWill,
Good luck with your scan. I have been there with the earpain. I pray it is nothing. I know the feeling. my last scan was not clear due to radiation. Next scan May 4th. Waiting is the hardest part. Again my thoughts are with you.
_________________________
Ilyse
46 non smoker non drinker.
SCC stage 2 in 1999 and 2010.
Recurrence 2011. Stage 4. Modified neck, thyroid cancer found. 7 weeks IMRT/Chemo cisplatin. Aug - Sept 2011.
2012 shwanna tumor on right auditory nerve. Not Cancerous only 20% removed. Wll do Gamma
knife.
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#148504 - 04/19/12 09:50 AM
Re: Ear Pain again
[Re: ilyse]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6712
Loc: PA
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Sorry to hear you are having a problem. Please dont panic yet! Scar tissue can be a tricky thing and sure play some tricks on you making you think something is alot more serious than it is. Hope you can find some relief very soon. Please check back with your results no matter what they are. You have your OCF pals in your corner!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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#148529 - 04/19/12 04:03 PM
Re: Ear Pain again
[Re: ChristineB]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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Fingers crossed its good news.l. Don't Give in to negativity.
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148557 - 04/20/12 06:08 AM
Re: Ear Pain again
[Re: ChristineB]
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Senior Member (100+ posts)
Registered: 03/01/11
Posts: 124
Loc: Portland Maine
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SCAN CLEAR !!!!! Doc said they were very readable and clear beyond a doubt. Thanks to everyone who truely is in my corner. You were right Christine...doc said scaring and radiation can cause all kinds of feelings. Phew....what a day!
_________________________
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
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Top
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#148559 - 04/20/12 06:53 AM
Re: Ear Pain again
[Re: MaineWill]
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Supporting Member (50+ posts)
Registered: 08/06/11
Posts: 78
Loc: New York, NY
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Congratulations!! The damage caused from treatment and these "new normals" are going to take some getting used to.
Very happy to hear your great news!!
_________________________
Sally, 38 years old
T1N0M0 Left Tongue Lesion, Moderately Differentiated
10 + year history Leukoplakia, Mild Dysplasia before cancer diagnosis 8/2011
Scheduled Partial Glossectomy & Neck Dissection 9-17-11
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#148562 - 04/20/12 07:53 AM
Re: Ear Pain again
[Re: MaineWill]
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Member
Registered: 04/17/12
Posts: 10
Loc: california
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Will,
So happy to fear the good news.
ilyse
_________________________
Ilyse
46 non smoker non drinker.
SCC stage 2 in 1999 and 2010.
Recurrence 2011. Stage 4. Modified neck, thyroid cancer found. 7 weeks IMRT/Chemo cisplatin. Aug - Sept 2011.
2012 shwanna tumor on right auditory nerve. Not Cancerous only 20% removed. Wll do Gamma
knife.
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#148563 - 04/20/12 08:01 AM
Re: Ear Pain again
[Re: ilyse]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 707
Loc: Ohio
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"doc said scaring and radiation can cause all kinds of feelings"
Truer words were never spoken!!!
Congrats on the great news, and have a fantastic weekend.
_________________________
Caregiver to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 and 3/2012 clear, 1/2013 physical exam clear
On thyroid pills. Getting slightly less sensitive to hot peppers, and can handle sweet hungarian paprika again. Life is good.
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#148570 - 04/20/12 09:26 AM
Re: Ear Pain again
[Re: Maria]
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Registered: 12/22/10
Posts: 3446
Loc: Toronto canada
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Yipeeeeeee!!! I knew it so glad you're doing good!!! Now get on with it times a wasting' seriously - I know it's hard not to have hose moments now and then... But - a clear scan always puts them in perspective! Woot!!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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#148578 - 04/20/12 11:50 AM
Re: Ear Pain again
[Re: Maria]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6712
Loc: PA
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Thats excellent news, Will!!!! Ive been thinking of you and hoping/praying all was ok. You do not want to go thru it again. Go celebrate!!!!
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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