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#146964 - 03/09/12 04:08 AM Re: Need help. Total glossectomy/laryngectomy/Trans fl [Re: Cheryld]
tamvonk Offline
"OCF Kiwi Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 03/11/11
Posts: 669
Loc: New Zealand
Hello,
Kris is doing great. He is off the ventilator and breathing by himself.
His face looks normal just slighty swollen. The graft in his mouth , well, itis healthy and continues to have a good blood supply. Guess that will take a week or two to settle and look less swollen.
The surgeon told me that they sent tissue samples from where his original tumor was and there is no sign of cancer, all margins are clear. So the good news is that this was a small local reoccurrence. Guess we are still waiting for the nodes to be looked at - they did bilateral. Neck dissection too.
I am feeling much more positive.
Thought I do realize we are still at the beginning of this phase of treatment.
Love to you all,
Tammy
_________________________
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2014 2 years post surgery .NED

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#146971 - 03/09/12 02:22 PM Re: Need help. Total glossectomy/laryngectomy/Trans fl [Re: tamvonk]
Cheryld Online   content
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Registered: 12/22/10
Posts: 4801
Loc: Toronto canada
Awesome so glad things are getting better! Take care!
_________________________
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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#146988 - 03/09/12 08:39 PM Re: Need help. Total glossectomy/laryngectomy/Trans fl [Re: Cheryld]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
Good to hear he's doing well. You are doing great too!! Thanks for keeping in touch with us!!
Kathy
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

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#147040 - 03/11/12 08:01 AM Re: Need help. Total glossectomy/laryngectomy/Trans fl [Re: KP5]
tamvonk Offline
"OCF Kiwi Down Under"
"Above & Beyond" Member (500+ posts)

Registered: 03/11/11
Posts: 669
Loc: New Zealand

Hi,
Kris has been back to the operating room tonight. The surgeons suspected a number of leaks from his suture sites in his throat. There were a few leaks but all are sorted now - I hope.
The surgeon did mention that at the time of surgery they did remark on how damaged all his tissues were from last years radiation and chemo - again the gift that keeps on giving.
So, hope it will be at least 2 steps forward now before we take another back.
I' let you all know.
Cheers,
Tammy
_________________________
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2014 2 years post surgery .NED

Top
#147048 - 03/11/12 08:34 PM Re: Need help. Total glossectomy/laryngectomy/Trans fl [Re: tamvonk]
KP5 Offline
"Above & Beyond" Member (500+ posts)

Registered: 10/09/11
Posts: 795
Loc: NY
Oh no. Hopefully they got it worked out.
How long do you think you'll be there?
_________________________
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/2012

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