OP  "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 |
It grieves me so much to write this.
Kris has had a reocurrence of his BOT tumour. There is no spread on CT - a local reocurrence at BOT only
We saw the Head and Neck team @ Auckland hospital today.
He is scheduled to have a total glossectomy/Laryngectomy and Trans flap with permanent tracheostomy.
I'm so scared. Can anyone help me with what to expect?
How as a caregiver/wife can I make this as easy as possible for Kris? What will life be like afterwards for him?
What "aids" for communication would be best?
I'm absolutely gutted.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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