#14036 04-04-2003 08:18 PM | Joined: Apr 2003 Posts: 122 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2003 Posts: 122 | Hello, all! My name is Gordon in Atlanta. Diagnosed 14Feb SCC right tonsil. Was to have small tumor removed 28Mar, but had grown enourmously! Now size of quail egg and hurting terribly. What luck to stumble onto this site and the first 3 posts I read at random were EXACTLY the same (well, VERY similar!) to my eperience. Being HIV+ I feel that plays a major role in my situaton, though. Been trying to research interactions w/chemo/HIV drugs. Any ideas where to look? God bless you all for helping each other! I hope to be around for quite a while and help out where I can, also.
SCC right tonsil Dx 14 Feb 03 No surg till Apr 03 Lip resection Sep 05 "frankenface" Recurr Apr 10 2/3 tongue removed Jun 10 SPEECH/SWALLOW/DROOL challenges FUN! Dec 10 Tumor @ nodes/larynx/cart artery growing Erbitux Mar 11 Hyoid bone regrows!? recur Dec 12 begin taxo chemo 10yrs-still kickin!
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#14037 04-05-2003 06:22 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Gordon, I can't help with the chemo questions (there are others that probably will) but I will answer any other questions that I can. What have you heard about treatment options from your Doctors?
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#14038 04-05-2003 08:39 AM | Anonymous Unregistered | Anonymous Unregistered | Hello and welcome Gordon,
I can't answer your questions about chemo/HIV. You could try a search on the main pages of this site or a Google search using those key words.
There are many people in different situations that come here and maybe soneone will be along that can answer these questions.
We'll be here for support as you go through treatment.
Take care, Dinah | | |
#14039 04-05-2003 08:41 AM | Joined: Apr 2003 Posts: 122 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2003 Posts: 122 | Hi, Mark. I believe one of your posts was one of the first I read. I am to begin radiation 10Apr, with chemo to follow at some point soon. I have come across "radioimmunotherapy" where antibodies are radiated and attack only tumor cells, but having to go to the charity hospital here in Atl (Grady, but it's affiliated with Emory University), I don't think they'll have such "cutting edge" options to offer. I have also signed up for clinical trials with Emory, as they are always doing research. Will know more next week.
SCC right tonsil Dx 14 Feb 03 No surg till Apr 03 Lip resection Sep 05 "frankenface" Recurr Apr 10 2/3 tongue removed Jun 10 SPEECH/SWALLOW/DROOL challenges FUN! Dec 10 Tumor @ nodes/larynx/cart artery growing Erbitux Mar 11 Hyoid bone regrows!? recur Dec 12 begin taxo chemo 10yrs-still kickin!
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