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#139453 - 09/07/11 05:29 PM How can I determine and contact the administrator?
Stily1 Offline
"OCF Canuck, across the pond"
Senior Member (100+ posts)

Registered: 06/25/10
Posts: 153
Loc: London England
Hi, sorry, probably a silly question but I can't seem to answer it for myself. Is there a way I can determine who administers this forum so I can ask that person a question before posting something that might not be appropriate?

Cheers,

-Seth
_________________________
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.

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#139455 - 09/07/11 07:09 PM Re: How can I determine and contact the administrator? [Re: Stily1]
Leslie B Offline
"Above & Beyond" Member (500+ posts)

Registered: 05/05/06
Posts: 716
Loc: Washington DC
The admins' names appear in red (take a look at the right in the Top Posters box -- there are four of them). Any one of those four can help you -- if you click on one of those names, you'll see his/her email address or be able to send a private message.
_________________________
Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.

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#139478 - 09/08/11 12:05 AM Re: How can I determine and contact the administrator? [Re: Leslie B]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
I start spouting off obscenitites like I have terrets and they usually contact me...
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#139488 - 09/08/11 01:57 AM Re: How can I determine and contact the administrator? [Re: EricS]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9165
Loc: PA
Please contact Brian, Davidcpa, Gary, or myself ChristineB. Any one of us will be happy to help you with your question. The best way to contact us is thru sending a private message. Click on one of our names and then click "Send PM".

We all keep a special eye out for our bad boy Eric! LOL!!!!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#139492 - 09/08/11 02:50 AM Re: How can I determine and contact the administrator? [Re: ChristineB]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4734
Loc: Laguna Niguel, CA
People who positively change the world are frequently perceived as trouble makers. Mahatma Gandhi, a personal favorite of mine, though there are many, was outspoken, openly disruptive, and through disobedience made his country (and the world by his example) a better place. So if Eric paints himself as a trouble maker, perhaps he is in good company.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#139493 - 09/08/11 02:53 AM Re: How can I determine and contact the administrator? [Re: ChristineB]
Susan2992 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/04/06
Posts: 715
Loc: Pennsylvania
_________________________
Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2016

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#139495 - 09/08/11 03:57 AM Re: How can I determine and contact the administrator? [Re: Susan2992]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
I'm not sure but I think Brian just gave me permission to spout off obscenities Christine wink
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#139526 - 09/08/11 02:19 PM Re: How can I determine and contact the administrator? [Re: EricS]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
Well, Eric - it's nice of you to give Christine a heads up. In any case, Brian placed you in very good company, I'd say.
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#139557 - 09/08/11 10:28 PM Re: How can I determine and contact the administrator? [Re: Anne-Marie]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9165
Loc: PA
Give 'em an inch and they take a mile! LOL smile

Oh Eric!!! Brian paid you a great compliment, but didnt give you the cursing pass. You and I understand each other.... you curse and I edit. You make me laugh, cry and always keep me on my toes smile Thanks buddy!
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#139571 - 09/09/11 03:30 AM Re: How can I determine and contact the administrator? [Re: ChristineB]
EricS Offline
Patient Advocate (1000+ posts)

Registered: 01/03/09
Posts: 1844
Loc: Idaho
You know I love you Christine!!! I'm actually still in shock at Brian's comment really...I mean the only similarity I thought I had with Gandhi was our weight at one point!
_________________________
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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#139599 - 09/09/11 05:27 PM Re: How can I determine and contact the administrator? [Re: EricS]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
Well after working in trucking/transportation business with truck drivers for over 32 yrs and after being married to a cop for 17 yrs nothing surprises me with what or how people swear as long as it isn't against me or my family or the USA I don't care what you say or how you say it. The one word that can be used in everyway and anyway is one that I am never shocked to hear come out of folks mouths. To me it's only a word but at times can have a lot of meaning and power depending on how you use it. I've been told I have a potty mouth and I really do "try" and watch what I say but dayem, it just comes out sometimes! lol
and I too Eric have fallen prey to Christine's editing. smile
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

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#139603 - 09/09/11 05:32 PM Re: How can I determine and contact the administrator? [Re: SUEZ]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9165
Loc: PA
What can I say? I take my admin job very seriously!!!!! Its my job to edit.

You guys should know I love you all and if you dont then Im telling you now smile
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#139604 - 09/09/11 06:13 PM Re: How can I determine and contact the administrator? [Re: ChristineB]
SUEZ Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/21/10
Posts: 531
Loc: AURORA, OH
we love you too Christine!!

And I'm afraid of you. lol
_________________________
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08

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#139626 - 09/09/11 11:26 PM Re: How can I determine and contact the administrator? [Re: SUEZ]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1301
Loc: Sydney NSW Australia
What Suez said accept I am not scared Christine smirk
_________________________
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family


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#139656 - 09/10/11 04:41 AM Re: How can I determine and contact the administrator? [Re: Gabe]
julieann Offline
"Above & Beyond" Member (500+ posts)

Registered: 06/24/09
Posts: 875
Loc: Alabama
Hey, want my 2-cents worth? Yes? Okay, being an administrator of a forum such as this where "everyone" can participate and not get upset over obscenities is a thankless job, Christine and other administrators. Sometimes we get carried away and use 4-letter words, but almost always "know" we are doing it, and EXPECT to be corrected by an administrator because there are some on the Forum who dislike obscenities. I'm not one of them, but I understand their feelings and certainly appreciate making the Forum acceptable for all to read. Eric, you are gifted in how you write, and you should pursue your book, and I can tell, when you do use obscenities in your posts, it's because you are so excited about what you are writing, you don't even notice. Plus, you're never offended when corrected. I love this Forum and enjoy reading and participating.
Hugs to all from julieann
_________________________
Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile

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#139661 - 09/10/11 06:17 AM Re: How can I determine and contact the administrator? [Re: julieann]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4734
Loc: Laguna Niguel, CA
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#139667 - 09/10/11 07:34 AM Re: How can I determine and contact the administrator? [Re: Brian Hill]
Sandy177 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/17/11
Posts: 571
Loc: California
I'm surprised we got away with the oral sex post.

Brian: have you ever been censored on the OCF Forum? Just curious... wink

Love you too, Christine!

_________________________
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.

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#139691 - 09/10/11 11:13 AM Re: How can I determine and contact the administrator? [Re: Sandy177]
Anne-Marie Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/03/06
Posts: 2671
Loc: TN
Whether censored or not, I find all posts tremendously educational, especially the one on oral sex cuz in "my hey day" it either was not very well known, discussed, popular, or perhaps it was just still in the closet. wink
_________________________
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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#139743 - 09/11/11 12:38 AM Re: How can I determine and contact the administrator? [Re: Anne-Marie]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4734
Loc: Laguna Niguel, CA
Sandy - I have been corrected, as you all know I am not a doctor, and while not admins we do have three oncology doctors that monitor the boards for accuracy as they have time each week. I have also had another admin tell me I was too harsh on someone that was getting under my skin, and I deleted several of my own posts. I guess you could call that being censored. God knows I am far from someone that could be considered a diplomat.

Like I always say, OCF's forums are not a democracy, and even I do not always have the final say. There are constantly judgment calls being made, if some comment or entire post is misleading, or if read a year later by some newbie, will it cause confusion. Those are just deleted. More than that, the forum is constantly being pruned every month, and many posts from years ago (as we have time to work on them) are being deleted. These typically fall into the "wish you well" kind of posts which years later just occupy space, and are related to a long past event. At the end of the day some of that has to take place or the forum software slows down, and there has to be some pruning of things, to keep the database running properly. So without containing offending or inaccurate information, many people's posts (including mine) are deleted.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#139761 - 09/11/11 03:30 AM Re: How can I determine and contact the administrator? [Re: Brian Hill]
Sandy177 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/17/11
Posts: 571
Loc: California
@ Brian: Awww...you know we all think you are as close to perfect as it gets! And, your edge and passion (and the language that conveys them) are a breath of fresh air and more than appreciated. We all learn from you every day. This cause resides in you--mind and soul. It inspires, educates, and comforts. Thank you, Brian!
_________________________
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.

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