| | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | hi everyone,
im very sad to be joining you tough cookies in the recurrence forum.
We found out this saturday that the nodule biopsy from left lung came back positive. just trying to cope with the news of reoccurrence at this point and hope for some news mid-week about what the next steps will be.
I am really hoping it is just an isolated nodule and we will be able to blast it away.
it is squamous cell, the same type of cell that was in his jaw tumor.
any advice is appreciated on how you guys get through this.
hope everyone enjoyed their 4th of july!
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Katie, I just posted on your other thread.
I am very very sorry to read the news of your future father inlaw. A recurrance can be done. He was tough enough to get thru a rough time of it the first time. Hoping it turns out to be something that can be managed easily so he can finally recover.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | thanks christine!! i have already recommended to my fiance and his family that they should make sure he gets on anti-depressants ASAP (this was already a recommendation from a nurse before we found out this result)- with the news this weekend, i want this to get started asap so he can stay motivated.
has anyone here used antidepressants during/after treatments? were they effective? Im hoping they dont mess around withanything else he is taking too much. i think they got him an Rx for a generic this weekend.
you are right, he was strong enough to get through months of a serious tumor last time, he can conquer this tiny nodule. im just hoping thats all this is.
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I would guess that about 1/2 of all the patients on here have taken anti-depressants. I didnt use any. Some caregivers have had to use them too.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | katie, im sorry to hear the news.
my mom has been on paxil for about 3 years now (since we first learned of the cancer). i strongly believe its helped her through all of this without having all of the breakdowns that ive been having myself!
sometimes its hard to convince someone else they should consider taking an antidepressant because they dont want to feel like theyre not in control. its just something you all should mention to him and tell him lots of cancer patients do take antidepressants. I mean, if anyone in the world should be on them, I think it is cancer patients! That is a real problem
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2010 Posts: 142 | My Mother suffered with Depression all her life and surprise all
3 of her daughters have been diagnoised with chronic mild depression. That means we all have a gene that just doesn't release enough of what we need to feel as I do today. I tried Everything exercise, St John Wort, group therapy. Nothing helped
I would go and cry asking how could I feel so sad, when I had everything.
I don't quite get why it is ok for a diabetic to use insulin but
anything goes wrong in your head you are weak or lazy or somehow
unable to cope. They don't make you feel unlike yourself but they do allow you to hope again, laugh again and be happy.
Sorry for the lecture I just had to get that off my chest.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
| | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | thanks everyone!!
fortunately he is open to the idea of taking antidepressants. i never considered caregivers also taking them but i am not surprised. they go through just as much.
i'll keep you posted on how it goes with them over the next few weeks- does it take effect immediately?
i was a psych major, i really should know this!
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Most antidepressants usually take up to 2 months to kick in. Ask the doc who is prescribing the meds. Some newer meds show results in a week or 2.
Best of luck with everything!!!!!
Katie, Im not sure where in Jersey you live. It would be wonderful if you could come to the oral cancer walk in honor of your father in law. I will be there along with many other OCF members from this area. This walk is put on by Susan Lauria in honor of her brother David Nasto who was taken way too young by oral cancer. Here is info....
September 25th- in Andover, NJ
Location: Perona Farms Route 517, Andover Township Sussex County, NJ
Time: begins at 8:30 am Walk begins at 11:00 am (Approx 3.5 miles) Rain or Shine!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | thanks for the info!!! i just looked it up and its not far from me at all.
i am telling my fiance we should do it, it will be 1 week after our wedding!
hopefully i can get lots of relatives and friends to join us. that would be great!!
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you are close, then I would love to see you there!!!!!!
One OCF member, Suzanne98 brought about 6 people with her to the Bethlehem walk.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Hi Palmtree-i live in NJ also. I have met some of the wonderful people on this board at the Andover walk. It is a wonderful event. Let me know via pm if there's any questions I can answer for you regarding your future FIL's treatment. My husband went thru similar surgery, chemo, and rads.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | That would be great if you can come to the walk!! Where in NJ do you live??
We have some good speakers coming, a stage IV survivor is coming and we also have a Dr. Rosenheck from the University of Medicine and Dentistry.
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | hi! yes ,i am trying to work on getting a bunch of people together to do it!
i live in hunterdon county. my fiance and i will be moving to mercer county/princeton area after we get married.
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hey Katie, what a small world!!!! I was born in Flemington and spent my early shildhood in Hunterdon Country. I used to work at the Hunterdon State School when I was about 20.
I would love to see you at Susan's walk in Sept.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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