| | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Hi Amy,
Along with the rest, I admire your fighting spirit! Hope you get that infection cleared up soon. Let us know what the Doctors say. I like that you talk to the Lord daily....I do too. You are in my thoughts and prayers.
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | I thought I would just let you all know, I am still around. The infection is about as good as it is goning to get, per my ENT. Next MO apt. is Oct 8. I believe if everything stays the same I will be starting carboplatin and taxol at that time. The better I feel with the infection the better I feel with the decision to do the chemo. I know I am not changing anything. The outcome is still going to be the same, but I might get some very special moments that I would not have had otherwise.
I am strong enough now that my local H&N support group that I have been attending for the last year are coming to see me tomorrow. I am thrilled at having company that I am not related too! I have been able to get out of the house a couple of times. Hubby doesn't like the idea of me driving. But that is due to the pain meds and not my strength. I haven't fought him too hard about this. Last thing I need is a ticket or worst.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Amy,
Glad to see you on the forum. I have been wondering how you are doing. That must have been quite the infection. You have an amazing attitude and I am in total awe of you.
I hope you have many, many wonderful moments...sounds like you have fantastic family and friends!
I've got you in my prayers!!
Margaret
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Amy,
Hang in there and lets hope the chemo works wonders.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | Amy,
God bless you and your fighting spirit. I am so glad you are doing better and the infection has improved. Will be thinking and praying for you as you march on.
Bonnie
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Amy,
It's great to hear from you. I bet it will be nice to people who are not family!! I hope you have a wonderful time with them.
I love your thought...enjoy your special moments:)
xo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Amy - glad to hearing you are feeling better. I do understand about not driving but geez its good to have some freedom every now and then to do things that YOU want to do. That is why God invented Taxis!! Splurge - enjoy.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jan 2008 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 26 | Hi Amy,
So glad to see you posting. Have a great time with your visitors. I laughed when I read your comment about non-family visitors :-) You are a very eloquent writer. Your posts inspire me everytime - you have such a bright warm outlook in spite of everything else you are experiencing.
Thinking of you.
Sending you hugs {{ }} and prayers,
Kim
08/24/07 Dx at age 44 never smoker, occasional drink
T1N0M0 G2
09/06/07 partial glossectomy(rt),neck disection (rt) 32 nodes clear
12/05/07 35 RTx w/boost, 63 GY, finished
12/28/09 PET/CT all clear!!
12/19/11 check-up, all clear - 4 years cancer-free now !!
| | | | | Joined: Jan 2009 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 54 | Amy you are truly inspiring. I hope you have a great weekend.
Cathy | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Amy
Just wanted to wish you the best. I can't imagine suffering the way you have at so young an age. You did bring a smile to my tired old face reading your carebridge journal entry about the feeding tube and the nurses not understanding that you did not need the extra hassle and indignity of syringing out your stomach contents before putting it back and then using the feeding bag. I loved your remarks about nobody making the other patients puke up their prior Cheerios. Your sense of humor is so awesome in light of all that has happened to you. I am only 8 months on the feeding tube and hate it. For what it is worth, I think you have made all the right decisions here - hard choices though they were. Words don't really cut it in situations like this, so I won't belabor it, but you are truly an inspiration.
charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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