| Joined: Jul 2009 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2009 Posts: 38 | 1st chemo in the morning, 1st Radiation in the afternoon.
Ready but nervous. I am most worried about nausea. I'm already kind of "barfy" so am expecting lots of ickyness. Not so much worried about being painful. I'm already in pain.
Mark BOT Squamous cell, stage IIIa
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Hi Mark. I had cisplatin 2x with my last radiation. The drugs they give you for nausea are great so just take them as directed and you will be fine. Where I had the trouble was that I also take blood pressure medication, and when I got chemo it had the bizarre effect of dropping my blood pressure so that I ended up being one of those fainting goats who falls over at the first loud noise! I got quite a shiner from one event.
If you take bp medication - make sure you watch for that. You'll get through it - we're here for you.
Donna
Last edited by Pandora99; 08-05-2009 11:26 PM.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Deep breaths mark,and good luck
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Mark, I never had nausea with any rads or chemo so all I can say is good luck. Maybe it won't bother you after all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Mark,
I had 3 rounds of Cis. The first one was pretty much a non event. The 2nd one caused me some nausea but it was also after I had 15 rad sessions and the 3rd was horrible but it was after I had completed all my rads. Each of us can react differently so lets hope it's kind to you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2009 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2009 Posts: 38 | Just got back. Yeah, Rad was a little iffy as they had me strapped down for 20 minutes or so before starting and I was having a sensation of choking when the Rad started. I think it'll be okay. They said today I was going to be strapped in the longest.
Chemo is no issues thus far. Took a Zofran as told when got home but don't have any side effects yet.
Mark BOT Squamous cell, stage IIIa
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Mark,
Usually they will take measurements once a week and that was Mondays for me so when they do that you are strapped down longer. You'll get used to being strapped down, if not there are pills available.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2009 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2009 Posts: 38 | today was quicker but still got the choking sensation less than half way through. Thanks for the suggestions of meds. I might ask for that next week.
Mark BOT Squamous cell, stage IIIa
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Also many of us were allowed to bring our own CD's and play them in their CD players. That helped me pass the time and occasionally took my mind to a nicer place while I was being nuked. I turned my music up as loud as they let me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 132 | Mark -
Don't hesitate to ask for the meds. They have gotten me through three weeks of the mask -- couldn't do it without them. Throw stoicism out the window!
Chrissy
Stage 2 SCC upper right palate Hemi-palatectomy and maxillectomy 5/28/09 Six teeth gone IMRT x30 starts July 13. Completed 8/26/09 Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Mark, you are in Oregon! Do you know how lucky you are to be in Oregon? The reason I say this is due to your states medical marijuana laws and how easy it is to get a prescription filled in your state. No matter what your attitude about the stigma of this drug, it really is helpful during treatment, my only issue with it is if it is smoked. There are other just as effective methods of "administering" the dosage, Charm and I's consensus is that vaporizing is the best way...but also can be used in tinctures and baked goods Anyway marijuana will help with anxiety, nausea, pain and promote appetite and I err SOME never experienced any side effects...other then appetite which was/is a good thing. During chemo/radiation I was unable to get a script for this as it isn't legal in Idaho, however a guy that I befriended during treatment lived in Clarkston WA where it was legal and he would "dose" before radiation and it really helped him during rads as he suffered from claustriphobia. He also told me that it helped with the chemo (cisplatinum like me) as well. I was soo jealous of that guy as I would rather trade in 3 of my scripts for the one drug he was using...actually 4 as marijuana always helps with sleep (for SOME). Anyway my friend, hang in there, you can do this thing.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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