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JElm #172656 10-16-2013 09:30 AM
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Posts: 134
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Posts: 134
Tina77, I just had a chuckle. Had a swallow study as well. When they hand you something to eat or drink and they have to also tell you what it is, well that can't be good...

This is applesauce.

This is graham cracker.
Ha!

That aside the technology is incredible. I went through some swallow therapy which cost a stinking fortune and I still didn't "pass" the second study. I decided close was good enough. Without exception, when I choke it's right after I did something stupid (too big a bite, too dry a bite with no liquid, etc). The therapy was beneficial but common sense is as well.


Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
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Posts: 875
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Sounds like me, Chris. I failed my barium swallow test miserably so swallowing therapy was ordered. I did 35
1-hr sessions of therapy and still couldn't do much better than I did when I first started them. I did learn to bend my head down when I couldn't swallow something, and also turn my head from one side to the next to swallow. Yippee! Insurance paid some but not all and it was expensive. It might help others, but to me it was a waste of time and money. Your "common sense" approach is better than the therapy was, hate to say.
Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
JElm #172678 10-17-2013 05:25 AM
Joined: Sep 2012
Posts: 381
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Posts: 381
Chris, I would have preferred applesauce, I got butterscotch pudding - ughhh.

I am, as always, so upset when I see that people cannot afford part of the treatment options that are available. Not to get political on anyone, but I was not out of pocket one penny, nor did I have to process anything through an insurance plan for speech, physio, nutritionist, hospital, you name it. Perhaps the US government needs to take a look at the (much maligned) Canadian health care system.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
JElm #172685 10-17-2013 06:47 AM
Joined: Apr 2013
Posts: 319
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HI Tina,

Since I don't want to say anything political, I won't say that we in the US have been well and truly hosed since we decided that Medicine was just another business in a for-profit world.

Nope, I wouldn't say that, even with a mouthful...

Last edited by Bart; 10-17-2013 06:48 AM.

My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
JElm #172695 10-17-2013 11:22 AM
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And in your not saying that I would say I agree...if we were saying it!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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