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| | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Well, it was a year ago last Saturday that Teresa underwent surgery to remove a little over 1/3 of her tongue. This time a year ago we were all scared to death! I am totally thrilled to report that she is doing GREAT, and her MDs are all very pleased. If anyone met her today, they would have absolutely no idea that she had ever undergone the surgery and radiation. She often talks about food tasting wonderful. The only lingering side effect is, of course, the dry mouth. Someone recommended theramints and she loves those, and says they are the best ever as she can carry these tiny mints in her purse.
Her doctors don't have her doing scans, but she sees them monthly. (I think because perineural invasion was the only reason that rads were needed.) Today the oral surgeon changed her visits to every 3 months. Needless to say we are so grateful that her recovery has been so fast and has surpassed our expectations.
So often, it seems, that the people who do well disappear from the forums after the recovery beings. Just wanted to share this positive update to encourage those still on this journey. Also to thank you all again for the support and information you provided to me. You helped me, and helped me to help her. I love you all and will continue share.
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Yay Dodie & Theresa!!! I also happy to see this post. Congrats to you both.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | That's fantastic news Dodie. Really happy for you both.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | It does my heart good to read this. Congratulations and continued good health for your aunt Teresa.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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