I realize my story isn’t as bad as others, but perhaps I have a lower threshold for suffering. In any case I’m quickly losing hope that things will get better anytime soon.

I was diagnosed with SCC of the left retromolar trigone in October of 2022. The malignancy was surgically removed 11/1/2022. I began radiation on 12/19/2022 and had my 30th and final radiation treatment on 1/31/2023.

Not long after the end of radiation I developed trismus, closely followed by loss of taste and low to no production of saliva. I’m surviving on three Ensures plus ice cream daily.

Pain near the site of my surgery turned out to be exposed bone. Today, I completed the 17th of my first 20 two-hour hyperbaric treatments. Friday, the day after session #20, the area will be debrided by an oral surgeon. A week from today, I’ll have the first of my final 10 two-hour hyperbaric treatments.

I see no end in sight. Any thoughts?

Hi Don, yeah baby, this is a tough road!! I remember when my ENT said it would take a year to recover. I said are you kidding...I am an a Ironman, he just smiled. Wow, it did take a year!1 it is day by day, week by week, Month by month. You will get to the "new Normal" just hang in there. There is light at the end of the tunnel, it is just a bit longer than ou hope11

Steve

Hi Don,

You're complaints have merit and are welcome here! I finished my surgery and radiation treatment 3 years ago and still have issues though not as severe as what you have described. In many ways, I see my cancer experience as a blessing. I found a deeper faith than I ever imagined. My wife says I am more present with family and special events (less drawn towards work, work, work!), quicker to take a vacation day and spend time with close friends, etc. I volunteer more readily in my community, more active at church, etc. Yes, my speech is slurred. Yes, I have million miler club status with my dentist, Yes, I have large scars on my neck and arms. Yes, my neck is tight and ball of tension. Yes, I worry about cancer coming back. Yes, it takes me forever to eat. Yes, I have to be careful of anything spicy. Yadda, yadda, yadda. I would not wish cancer on anyone but I am extremely grateful for the many gifts cancer gave me.

Stay safe and keep the faith,
Nels