Previous Thread
Next Thread
Print Thread
#99839 07-20-2009 09:09 AM
Joined: May 2009
Posts: 27
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: May 2009
Posts: 27
Completed TX of chemo and RT 2 weeks ago. Radiologist in check up said cant see or feel any lumps, which I take is good news. I am off all pain meds. Syill have PEG tube and drinking 1 instant breakfast orally per day. Ha ve meeting in am with Chemo MD, ant special questions I should be asking. I have CAT scan in 3 weeks to see what they can see. I cut out the Regalin and shakes got better. MD seems to think weakening of muscle is contributing. I start physcial therapy this week.
What can I expect over the nex 3 weeks? Still sleeping 12 hours a night.


Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
IrishMiat

Hope your meeting with doctor went okay. As for the next three weeks, expect more of the same. some sail though this, others do not. consider yourself lucky to sleep 12 hours a night as I was and remain plagued by insomnia after each radiation treatment. and best of all, you can expect things to start getting better. Keep up the physical therapy exercises and consider some soft food or soup to keep your swallowing in good shape. One word of warning: watch out for Trismus, this is just about the time it starts creeping up on you. You should also watch out for your teeth. Measure how much you can open your mouth and be sure to start the exercises to strengthen your jaw. Your medical team should be able to recommend a dentist with experience of oral cancer patients as I got both Trismus exercises and flouride gel during radiation and certainly daily after TX
good luck
charm
PS.now go to general forum and read the cancer award sticky and VOTE for OCF


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,933
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5