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#99839 07-20-2009 09:09 AM | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2009 Posts: 27 | Completed TX of chemo and RT 2 weeks ago. Radiologist in check up said cant see or feel any lumps, which I take is good news. I am off all pain meds. Syill have PEG tube and drinking 1 instant breakfast orally per day. Ha ve meeting in am with Chemo MD, ant special questions I should be asking. I have CAT scan in 3 weeks to see what they can see. I cut out the Regalin and shakes got better. MD seems to think weakening of muscle is contributing. I start physcial therapy this week. What can I expect over the nex 3 weeks? Still sleeping 12 hours a night.
Age 63, occasional drinker, smoked for 40 years Base of tongue, stage 4,T-2,N2B Cisplatin 1xweek 30 RT ended 6/25 PEG removed 8/23 PET Scan shows scaring but believed no tumors 9/25
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | IrishMiat
Hope your meeting with doctor went okay. As for the next three weeks, expect more of the same. some sail though this, others do not. consider yourself lucky to sleep 12 hours a night as I was and remain plagued by insomnia after each radiation treatment. and best of all, you can expect things to start getting better. Keep up the physical therapy exercises and consider some soft food or soup to keep your swallowing in good shape. One word of warning: watch out for Trismus, this is just about the time it starts creeping up on you. You should also watch out for your teeth. Measure how much you can open your mouth and be sure to start the exercises to strengthen your jaw. Your medical team should be able to recommend a dentist with experience of oral cancer patients as I got both Trismus exercises and flouride gel during radiation and certainly daily after TX good luck charm PS.now go to general forum and read the cancer award sticky and VOTE for OCF 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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