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#99728 07-18-2009 10:40 AM
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I have finished all of my treatments and am in the recovery phase. I put in for compensation with the VA. Although BOT is not "presumed" for vets with "boots on the ground" I have seen a few folks fight denials and get compensation. Just wondering if there are any of you out there??


John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
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Not sure I understand your question. Are you trying to imply that somehow BOT SCC is related to the Vietnam war?

Were you a tobacco user?

Have you been tested for HPV?

There is a 70+% chance that your BOT SCC was caused by HPV and you may or may not have acquired that during the Vietnam war.



David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Smoked for about two years. Ages 18 and 19. Have not smoked for over 40 years. Very light user of alcohol. HPV testing was negative. My radiation doctor and my oncologist both wrote letters stating that, although they could not say where my cancer came from, they could not rule out that it was not related to a herbicide. Also, the tissue in the larynx and esophagus, are not dissimilar to the BOT tissue.

I was heavily exposed to Agent Orange in 1967 and 1968 and always felt that one day I would develop cancer. Again, I realize that no one can equivocally state that Agent Orange was the cause but then neither can they state that it was not...

Thanks for asking Dave and I always find your responses to others helpful and informative.


John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
Joined: Jun 2007
Posts: 595
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Thank you for your service to our country! I was stationed at Camp LeJuene in the early 70s and they are involved in a drinking water study invoving 1000s of us who used and drank contaminated water from the base dry cleaning company, so far they have admitted to causing numerous tpyes of child hood cancers and are studing whether my cancer was caused by these same contaminates. I lost a good freind last to agent orange caused cancers, he was there in 68-69, I lost my Dad to liver cancer though he never drank and he was there in 68! So keep fighting the Va and good luck. Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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Just so you know, units/ individuals that were exposed are well documented. Operation Ranch Hand and others that sprayed agent orange, agent white etc. have had all their flights, date of mission, terrain covered etc. and most importantly units in the area at the time, and in the area post spraying, well documented decades ago when this all came up and went public. The cancer that it is most associated with is lymphoma, and ironically Admiral Zumwalts (the man who OK'ed and ordered the operations), son was a brown water sailor and died from lymphoma as a result of his exposure when in country.

Settlements that I have seen since I started following this decades ago have been very specific to people that DOD records document were in the right areas at the right time, and also developed specific cancers known to be associated with dioxin. Base of tongue cancers I have not seen covered, but I am not the expert on all this. Dioxin is heavily associated with birth defects and besides in the Vietnamese population post war, there have been settlements related to that here in the US in families of Nam vets.

So if you are going to (now well past the major settlement effort time) go into this, be sure that you can document your units and dates, (they already know who was where and when) because that's what they are looking at. You should read "An army waiting to die" when you get time.

You don't say your branch of service or unit, I have some records that might help you from when I explored this, that I might be able to dig up for you, though most of what I have is related to units that I was with in the First Marine Division as a field medical corpsman. Don't know about your tour of duty, but in my 2, I served with several different units, and short time TAD to others, as well as in many different geographic areas in the I Corps near the DMZ.



Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Good luck John. I may not be the best one to give you this little piece of advice but I wouldn't concentrate to much effort (right now anyway) in trying to find out what caused your SCC. Lets get it cured and then we'll tear up the internet and the government, if we have to to try to find out!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I second Davids advice.
While there are many agents contributing to cancer, it is only possible to avoid some of them.
There is a chance that there is no smoking gun (chemicals, viruses etc) but just bad luck and/or the genetic makeup.


M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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Thanks Bob ... I keep hearing that bird going "bob white, bob white, bob white"...I read about the Camp LeJeune problem and wondered how that was going. Thanks also for your military service. Good luck with your situation. I was in the Army my late brother was a jar-head and my other brother a squid!!!


John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
Joined: Mar 2009
Posts: 32
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Thanks for your comments and interest, Brian. I was in the Army. My problem was that I was NCOIC of a Short Range Radio Direction team. I spent my first six months with the 11th Armored Cavalry and my last 12 months with the 1st Infantry Division. My job entailed constant shifting of positions all over III Corp. We usually set up operations with Fire Support Basis, ARVN camps or Special forces camps. Other times, just out in the bush where we could get some coverage from combat troops. I could not tell you (or the VA) where we were operating from at any particular time/date, nor do I think that it would be a matter of record anywhere. We just followed the path of the VC and NVA to get close enough to copy their transmitters and DF them for target practice!! We never operated "inside the wire" because it affected the sensitivity of the loop antenna. We operated mostly around Nui Ba Dhin (sp:) (the Black Virgin Mountain). I spent Tet in Loc Ninh, a fun place to be during Tet. I not only recall times when we were oversprayed but also when the tracks of my APC churned up gas settled in the ground (mostly tear gas though) and God knows what else.....


John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
Joined: Mar 2002
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I certainly know of what you speak about being in areas where you are completely your own and off the farm. The reason I mention it was the attorney that I worked with back in the day of dealing with this, was up against government legal beagles that had data about our unit's position, detailed with reference coordinates, time and dates, and so much more. I kept a journal that was updated daily as I processed and tried to cope and understand what I was in the middle of. But my notes from that journal were not "legal tender" in the argument. When TAD to a ROK marine unit that was short medical staff, we crossed the line into places that our government (who sent us there) was saying we never were. THey denied we were in another non-combatant involved nation for decades after the war. There turned out to be so mush BS and grey area, that I just dropped it after awhile, since I was not actively ill at the time, but only wanted to get on the list in case I developed some crap in the future.

In my own case HPV16 was positively identified in the tissue sample, so for me OC was not part of my military history.... just the nightmares.

When I came back to the world, I was in San Francisco with a writer who had spent some time with our unit while I was really short. We were walking down in Haight-Ashbury (the world was way different in those days), and there was a blind guy selling stuff to get by, on one of the street corners. He had a sign around his neck which read "My days are darker than your nights" After dropping a couple of bucks in is jar, I bent over and said softly to him, buddy, you have no f*&^ing clue how dark my nights are..... The writer laughed and said that was such a good line that he would use it in the future.

There are times when Nam seems the full 40 years ago, and others when it seems like yesterday.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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