| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Awe gosh ya all. You have me blusin big time here. LOL Seriously , I would like to thank you all for the great support you give me. That's what makes me tough.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Best of luck Jim from another of your Angels. Am having an operation myself tomorrow 23rd (Brian's Birthday). Don't think it is OC related however part of it is the removal of a large cyst in the pelvic area which they will test during the op. Will be in for around 5 days and home for 4 to 6 weeks (no driving or lifting) so will have plenty of time to catch up on the forum then  Love from Angel Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2009 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 51 | I'm new here, but see you lending support and good advice to everyone throughout the forum. I'm sending positive energy and prayers for a speedy recovery. Hope to see you back on here soon!
Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Jim, sending good thoughts and prayer your way. Hope all goes well.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Good luck Jim and more good luck for Gabriele :-)
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Jim, you deserve all the positive support and kind words you're reading! We all have benefitted from your support, advice, humor and caring. I'm keeping you in my prayers that your surgery will be smooth sailing and the last surgery for at least the next 50 years or so!!! Gabe, I'm also sending prayers and best wishes your way during your upcoming surgery. Both of you take care.
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
Hi there Jim,
I hope everything goes extremely well for this next challenge that you have ahead of you. Sending you lots of positive thoughts for a quick and speedy recovery.
((hugs))xx
Gabrielle, hope your surgery and recovery is also quick and you are back up and around soon. Take care and best wishes
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The only thing I can think of to say is Thank you one and all. Good luck and a speedy recovery Gabe.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have never seen so much confusion over one procedure as I did this CatScan.Yesterday they remembered I am allergic to IVP DYE and called me to cancel it, Heck we just needed a prep kit to go with the barrium. I told the nurse I could get the prpep kit and whateverelse she needed to keep it a go for today, Well we made it trhu and got he green lite for the Scan. I took all 15 of the pills I needed and 2 capsules were at the ready. I drank half of thr barrium and just couldn't cut the sitting around wating for 1 PM so I called the radiology dept to see if it would hurt anything if I pushed the hand mower. LOL Then it happened,. I was told I was informed to be there at 8:30 AM and not to drink the barrium. LOL I said hold on here lady, who was supposed to tell me this stuff? She stuttered a little and of course she was innocent. She called me back after she talked to the DR and said finsih the prep pills but throw away the barrium and get here as fast as you can make it. Showered, shaved, and brushed my tongue and made it there in about 35 minutes. I have never got into a scan or anything that fast. After the girl pulled the IV out of my arm the blood shot across the room and all. One of the nurses started to wipe my pants off LOL , I told her damn that feels good. wipe some more and she started to laugh with the other 2 of us. I told her that these monthlys can be a pain in the ass. LOL I told them, I couldn't pass that one up. Actually it was a fun time there at 10 AM. At least I left the room in laughter.But had to sit for about 15 minutes from the afteraffects. Then had to get some coffee and wait at the exit to feel good enough to drive, That stuff almost killed me a couple of times before.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Good Lord man. You never do things easily do you? Too funny - I'm sure you made their day with your humour. Glad to hear you got the test done and made is home safely. What is next on the agenda?
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | |
| Forums23 Topics18,170 Posts196,933 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
