#96297 05-29-2009 07:42 AM | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2009 Posts: 128 | Just to let everyone know. I am down four weeks and have four more to go. I am still eating by mouth, eggs, soups, pizza[I WISH]. My mouth is now starting to get little sores on the sides, but my pain has not increased too much from two weeks ago. I feel 100% better now that the Ethyol shots have been discontinued. I still continue to work full time. Once again, thanks to all who have responded and shared their journey with me and all who visit this site. Tomorrow, 5/30/2009, I will walk a lap around a track in the Survivor lap in an event sponsered in Pottstown Pa. We have the 5th largest walk in the country. When I walk that lap I will be praying for all who have been touched by Cancer, and all on this site.
WFC
Age 57 at dx on 3/30/2009 by Dentist SCC of R tonsil S2 Poorly Differentiated - 2.5 cm Rad - IMRT 5x a wk for 8 wks starting 5/4/2009 No Chemo Last Rad treatment was 6/26/2009. Two years down as of 3/30/2011! God bless all affected by this monster called cancer!
| | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2008 Posts: 148 | You sound really good for having been in 4 weeks WFC. I too will do several laps in the Survivor Walk in our Relay for Life this afternoon. Best of luck to you.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2009 Posts: 128 | Thanks William 1949. I keep waiting for the BOMB to drop, but I am taking this journey one day at a time. I REALLY do miss my pizza!
Age 57 at dx on 3/30/2009 by Dentist SCC of R tonsil S2 Poorly Differentiated - 2.5 cm Rad - IMRT 5x a wk for 8 wks starting 5/4/2009 No Chemo Last Rad treatment was 6/26/2009. Two years down as of 3/30/2011! God bless all affected by this monster called cancer!
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Way to go wfc, maybe you're going to be one of the few that skates through. I hope so.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Are you sure they remembered to the machine on? Hope it keeps up this way. Why 40 instead of the usual 35? Enjoy your walk.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2009 Posts: 128 | Eileen,
It is actually 39, 28 from the top the head to the collar bone on both sides and then 11 directly to the tumor. I can hear the machine and it moves, so I hope it's on! LOL Thanks!
Last edited by wfc; 05-29-2009 10:53 AM.
Age 57 at dx on 3/30/2009 by Dentist SCC of R tonsil S2 Poorly Differentiated - 2.5 cm Rad - IMRT 5x a wk for 8 wks starting 5/4/2009 No Chemo Last Rad treatment was 6/26/2009. Two years down as of 3/30/2011! God bless all affected by this monster called cancer!
| | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 253 | wfc: See if you RO doctor has a shield for your cheeks. Mine created what looks like X-ray blocks that dentist use from wax for me to use. They have helped with cheek sores.
BTW: I miss pizza terribly also!!!! I keep trying things I usually love, but only after 1-2 bites have to give it to a family member to fnish. Can't wait until the BUDS come back.
Congratuations!!! Hoping the next 4 weeks go easy on you.
Sandyst
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0. Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09. OCF member/supporter
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