#9467 02-08-2007 08:04 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Hi everyone,
Tomorrows the day of surgery, I think it is finally setting in. Is it to late to say I dont wanna do this ? LOL Game over..wake me up in 6 months. I am having a partial glossectomy (left) and Modified neck dissection (left). heal from that then some type of radiation depending on pathology of nodes. I want to scream but I dont think that is going to help much . I have done so well up until now ..I knew I was going to have a breaking point and I think this is it. I just want to say THANKS to all of you for the advice and sharing of your own personal experience , This isnt ever going to be an easy thing to go through , but having you all makes it more bearable.
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#9468 02-08-2007 08:44 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Sharlee, I would scream now while you have the opportunity! You may need the release ;-) Don't be embarrased to ask for anti-anxiety meds - I took them all throughout treatment and they helped a lot.
They also do a remarkably good job in the area of pain management and it is your basic right to it so IF need be, insist on it.
Anyway, good luck tomorrow and I am sure that you will come out of this just fine. Keep us informed of your progress.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#9469 02-08-2007 09:11 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | My thoughts and prayers will be with you. A lot of us have been through similar procedures and come through it, but it's different when it's you. You will make it through just fine.
Tim
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#9470 02-08-2007 09:52 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Sharlee,
I'll be thinking of you and hoping for the best possible results.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#9471 02-08-2007 11:38 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Sharlee,
I think you will surprise yourself. You will do fine. Post as soon as you feel like it and tell us all the details of your surgery. Remember you will be helping others about to go through what you have experience with. At a minimum keep detailed notes so you won't forget a year from now when a newbie asks for help.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#9472 02-08-2007 11:49 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Sharlee, Hang in there. We all will be sending prayers and good vibes your way. We made it, you can too.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#9473 02-08-2007 11:53 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Sharlee......I agree with David....You will surprise yourself. Of course, you have no choice, and you will soon stop resisting and commit yourself to the "project at hand," which is YOU and your health and doing whatever is necessary. Is this the way you had envisioned 2007 going for you? Of course not, but then, nobody knows what any day will bring. This is your project for now, so invest all your energy into it, and you will do great! You can pick up where you left off before you know it. Will life be exactly the same? Of course not. It might be even better! Look for the blessings in the experience. They are there.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#9474 02-08-2007 11:56 AM | Joined: Jan 2007 Posts: 40 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jan 2007 Posts: 40 | Hello Sharlee, Good luck with all of your treatments. My op (similar) was Dec and I have recovered well from the surgery - I wish this for you too of course Georgia | | |
#9475 02-08-2007 12:32 PM | Joined: Jan 2007 Posts: 11 Member | Member Joined: Jan 2007 Posts: 11 | SHARLEE, Before you go to bed tonight just ask god to hold your hand tomorrow threw your surgery and to give you strenth to dill with the recovery and I beleave everything will be fine. just keep up the + attude fight hard a let god do the rest. I will be praying for you lol. Raymond
RAYMOND--StageIV T4MO scc dx'd 1-24-07 surgery set for 2-23-07 full removel of top jaw bone,partial palatectomy'neck dissection,removel of two lymp nodes,all clear,waiting on chemo and rad to start.
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#9476 02-08-2007 02:25 PM | Joined: Mar 2006 Posts: 62 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 62 | Sharlee- Screaming is good... legal drugs to calm the edges are better.. You will do this. You will get through it and you will fight this cancer with every bit of energy you have and when you feel despair you fight some more.Everyone on this forum cares and all are fighting each day whether before, during or after treatment and enjoying the fact that we have each day to share with our loved ones and ourselves. Let us know how you are doing we are there for you. Gil and I live near Cooperstown and I am from way up noth- Plattsbugh and Malone?
caregiver to Gil.dx 11/05.T2N2M0, Stage 4b, SCC BOT, rt tonsil, 3 Lymph nodes, 35 Dailey IRMT, 8 chemo3, finsihed treatment 3/9/07
caregiver to Gil dx SCC 11/05 T2N2M0 finished tx 3/10/06 stage 4 rt tonsil,BOT,2 lymphnodes,35IRMT,6 chemo
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