#94327 04-26-2009 03:20 AM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
I queried a while ago about the chemo cream 'Efudix", as pre-cancerous cells on my lower lip were discovered from a biopsy, after severe bleeding late last year.
Well, I survived the 'Efudix' (almost!), stopped it early after 13 days because of more bleeding, oozing, swelling and pain. I saw my dermatologist last Friday and was given corticosteroid cream, plus moisturisers. I stopped using this corticosteroid cream last night as I'm still bleeding, oozing and sore.
My query is, could this be a result of radiotherapy (38 or more doses, 3 fields, no IMRT)? Has anyone else experienced such problems?
Cheers!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Tizz,
So sorry to hear that this cream is also giving so many issues and pain. Hopefully someone here can answer your query.
Love
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Gabriele,
As my usual luck the dermo wasn't in today, but after explaining to the receptionist my little dilemma, the message was passed on and the dermo called back. I have to continue with the cream plus do some other stuff. Painkillers don't pain kill! Sick of washing pillow slips...Heath Ledger, eat your heart out, I look almost as good now in the mornings!
Cheers!
Tizz ;-)
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Tizz, I like the post to the health ledger, LOL good one and congrats.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 |
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Meredith,
Long time, no speak.
Sorry that you are having this problem and wish I could help. I hope you are doing better by now. I don't get to the forum every day like I used to. Lots of things going on here.
Say hi to Bill and I hope he is doing well.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Jerry, I don't get to forums as much as I used to also. Saw my Dermo late on Wednesday and have been given antibiotics plus "Diprosone" cream. As so far the swelling seems to be going down, but the blood and goo is still annoying, besides embarrassing in public! Bill is doing fine, but who wants to wake next a wife looking like "The Joker", Mr Ledger? :-) Cheers! Meredith www.soundwarp.com.au
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | hey Meredith
nice to see you
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
Don't always have time to communicate, too busy trying to run the business.
Husband Bill (Jerry met him in Manly, Sydney, Australia) has lung cancer, non-small cell, so I've been a bit busy. At least he is in the same hospital I was, and his Onc knows my ones! Small world!
My lip "solar keratoses" has settled after the chemo cream treatment, bleeding stopped, can speak again - at least now I can give a bit of lip to people!
Hope everyone is doing OK.
Cheers!
Tizz (aka Meredith)
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Tizz,
Glad your lips have cleared up but sorry to hear about your husband. What is their plan for his treatment?
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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