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#92335 03-22-2009 03:11 PM
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rubyann Offline OP
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I went back to the surgeron the other day, she told me how great I looked and how well I was doing, that every thing was great. she feel my neck and looked in my ears, checked ny rash and said I was all healed and doing great. big mouth me I pull out my lab, cat scan and doctors report from the cancer center, She got mad, pulled it out of my hand as i was raeding from it and looked it over, she said this is all a lie, you shouldn't be reading it, your doing great and all of this is lies. I said the doctors are lying to me and she said yes, she said there was nothing wrong with my kidney. I said I really need someone to set and and talk to me about all of this, she said its all a lie, came back in one month and left. How can the cat scan, lab worker and all doctots but her be wrong. I wish they where. I had been to my gp a few days before about my husband,elec. wheel chair and He was talking about me one, I said I don't need one, I'm going to get better. He said I can see the two of you riding down thou the mall, he said they do make them two seatter. I said again I'm going to get better aren't I, He never did answer. He said come back in a month and left. I don't know, do they even know, before I have more test. but most days even with cane I fall down. the last two days I've been crying a lot, not because of the illness, but because I need to know. I'm the type if I know I may cry, but than I get over it and get ready for it. other wise I set around and worry. should I have comfronted her with paperwork,I would love to believe her, BUT she is the same one who told me and my family that she got all the cancer, it wasnt on the bone.and I had nothing to worry about. 10 days later she told me it was on the bone and she couldn't get a clear margin. when I asked her about side effects of treatment, she told me she could have tore out my jaw and took a hunk out of my arm to fix it, and people think I'm crazy, I just want someone to tell me the truth and I'm going to a kidney doctor Fri. how much do I ask him, Is it ok to ask about test and different ways to treat it or should I just go in and keep my mouth shut and do as I'm told, should I ask for copies of my records there? another thing my gp ask for a copy of my records and lab work from the cancer the other day and I gave them to him ( I make a copy and carry last 2 visits with me to every doc. most want them) shouldn't they already have copies? Sorry to bother you all again, your all so nice and helpful, when it come to cancer I can't help on one. cause I don't know anything about it, beside what i learn in here.


cancer surgery on July 7th. 2008, I'm now a survivor. cancer free for now. 39 radiation, and 8 chemo treatments.
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Ruby

Sounds like you should have a new doctor. I know its the surgeon you saw who said the others all lied to you, but still. Find a new doctor even though you dont have alot of choices where you live. Try to find a new one who will be more open and talk to you so you can understand everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 493
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It does sound like you need another Dr. It should always be OK to discuss all options and different treatments with your Drs. Do you have access to a Social Worker/Service in your hospital or community that you can speak with?


Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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"OCF Canuck"
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Wow. I sure don't blame you for being upset! Definitely get another doctor and get things straightened out. Tell them clearly that you want straight honest answers. Type out on a paper exactly what you posted, and give it to the first doctor you see.

I suggest typing it out and giving it to them so that you get to say it all. Too often in the midst of an appointment, we forget 1/2 the things we wanted to say.

Good luck.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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I hope that her malpractice insurance is paid up. It's never advisable (nor professional) to take such a strong, I'm digging myself into a deep hole, position without first at least reading everything you had in your hands.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Talk to her in a short understandable way, Tell her to go to hell and that you will get a Dr that knows what goes on.. maybe one of the Liars.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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"OCF across the pond"
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Like everyone else it sounds like you need to see someone else.
In the UK we have a charity with qualified nurses called the Macmillan nurses. They are always around the hospitals and cancer patients. They can help with pain, advice, maybe help to get through to doctors as well as help with the social care side of things. I tried to look on the internet for an equivalent in the US but couldn't find anything. Maybe your GP or consultant knows of something like that near you?


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
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Posts: 48
rubyann Offline OP
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Thank you all, I'm going to try and get one before the next visit, I will ask my pg, he don't talk much but he has never lied to me and has alway been helpful. The next doctor I see is a new one,from clinical professor of medicine of medicine UC san Francisca, Nephrology internal medicine. I don't want him to think I'm trouble before he gets to know me. which she knows I'm going, she most likely will sent him a report. She will not give me any of her records, and she made me sign a paper before 1st. visit that she or her staff would not take part in any law suite. I had never seen a paper like that at a doctor's office, have any of you? well I'm looking at bright side, that I will just have to take new pills the rest of my life and watch what I eat. With all the food I can eat now, it will be no problem to give up a few more....lol. have a great day.


cancer surgery on July 7th. 2008, I'm now a survivor. cancer free for now. 39 radiation, and 8 chemo treatments.
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Cancel your next appointment with the surgeon. You deserve to be treated with respect. A good doctor is not threatened by peers that disagree with their medical opinion and confers with them for the good of the pt. If you like the new doctor tell them about your difficulty with the surgeon.They may be able to help you or can direct you to people who can.You can still talk to your GP if it doesn't pan out. You have enough stress without having your doctor behave like an idiot. In Oregon we are able to access Drs Medical Board standing in the state. They're the place pt's complaints are sent.To get well you need to have doctors that will work with you. Go get'um Rubyann.
Sweetpea

































Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33

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