| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Don't tell him it's ok to eat. make him et because after the treatment starts, he will lose it way to fast like some of us did. I lost 70 lbs in just a few short weeks and I was doing my best not to.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2009 Posts: 4 Member | | OP Member
Joined: Mar 2009 Posts: 4 | Thanks everyone - what a whirlwind this week has been! He is getting surgery tomorrow at Duke. He is stage 3 - they are cutting out 1/3 of his tongue, the floor of his mouth w/ a skin graft from his upper thigh, and selective neck dissection.
We went up for our second opinion this morning (4 hour drive), had no idea it would happen TOMORROW, so we are home paying bills, arranging childcare, reeling, etc. and will get back in car at 5 am to return to Duke. He had a cancellation - next slot was over 3 weeks from now.
I borrowed a laptop to take to the hospital.
I will keep all posted.
Laurie | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Laurie:
Wishing your husband the best of luck with his surgery tomorrow. Stay strong, this is the start of his long road to being healthy again. Its going to be difficult at times, but hang in there.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Laurie...wow!! That was all so quick for you. You must be very busy. Good luck with everything. Please lean on us here for support. We are here for you as you begin this road. I hope it helps you to know there are people here who care about you.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | Laurie:
Hope all goes well , who is his surgeon ? I had Dr Esclamado. Duke is a fine facility, he is in good hands.
Bill
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
| | | | | Joined: Mar 2009 Posts: 4 Member | | OP Member
Joined: Mar 2009 Posts: 4 | Yes Bill- Dr Esclamado. He is stage 2 - not 3 (wrong Doctor's diagnosis - I am turned all around)
Thanks everyone!
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