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Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Today I participated in my RO's 2nd Annual Colloquium on H & N Cancers. I did this last year and he asked me back this year. He and a teaching doctor from Moffitt give their presentations and then I get up and spend the next 2 hours giving the patient's perspective which is followed by a Q & A segment. This is done at Moffitt and the attendance is required of the med students so the turnout is a packed auditorium. Last year this presentation format received a student rating of 4.6 out of 5 and I'm sure this years went as well. I really enjoy the opportunity to shape future doctors into my way of thinking. lol

Anyway I was busy taking notes during the docs' speeches and here are a few things that I thought we would find interesting. These are not listed in any order:

1. My Ro is currently writing the research plan to compare the effects of limiting treatment on HPV+ patients. He's not sure what will be limited, i.e. less radiation or less chemo or less of both, etc but he wants to do the trial. All he will need is willing patients. lol

2. A node larger than 1.5 cm is assumed to be pathologic;

3. 95% of all H & N cancers are SCC;

4. There are over 2 million users of Betel nuts with the overwhelming majority coming from SE Asia and the majority of H & N cancers from India are associated with Betel Nut use. A student reported that you can buy a solution of tobacco and Betel nut juices in Tampa;

5. Cancers of the Oropharyngeal region (BOT and Tonsils) represented only 18% of H & N cancers in 1970; in 2005 that increased to 32% and today Trotti estimates it's over 50% due principally to HPV;

6.The first H & N cancer patient was treated with radiation in 1902 and he was an attorney. Trotti confessed that doctors even then made mistakes. lol;

By far the most interesting thing I learned and I may post this separately is that sometime this summer Moffitt will have operational a new radiation machine that will SLASH, with a CAPITAL S, the table time for radiation delivery. For example, he told me that where as my radiation sessions took 15 to 20 minutes (without measurements), this new machine will deliver the same fractional dose with as much or greater accuracy and flexibility in appx 1 MINUTE. It will also give the operators a computer scan every day so they can adjust to changes with much more frequency and accuracy eliminating those measurement days. This new machine will be aptly called RAPID RT.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Very interesting facts. Thanks for posting this, and also for helping to spread the word. When actual patients participate, it helps doctors understand OC so much better.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2009
Posts: 216
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jan 2009
Posts: 216
That is so cool that you could participate in this! Awesome way to bend those new docs to your way of thinking smile Way to go!!!


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10

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