Do you ever feel like this is it, you are just snowballing down a mountain and there is no way to stop it, no way to fix it??

H is in the midst of radiation and chemo for the second time. This time, it was because of a large tumor on his left neck (he had chemo and radiation a year ago for his right neck, where there were 9 positive nodes). Anyway, Ok - so I accept it is back, and was ready to just do the treatment, then the surgery. I was prepared. I felt we had a plan. I felt that it would be under control. But here we are in the midst of treatment, and H confides that he thinks the tumor has gotten a little bigger (it had shrunk a bit) and that he feels a small lump now on the back of his neck. After all we have been through, I just feel like this is the beginning of the end. And I don't know why and I hate that I can't stop it. My God - I am totally changing everything - the way we eat, our stress levels, everything, but I feel like it is all too late and there is nothing I can do. We see a doctor tomorrow, inevitably, they won't know what the new lump is and we will get no info that makes us feel any better.

I hate this.
__________
Angie
Husband's history: Stage I sore on right tongue, removed by surgery 7/06. In 1/08, noticed small inflamed node in right neck. Radical neck, 8 positive nodes, cisplatin and IMRT to bilateral neck for 6 weeks. 12/08, large tumor in left neck. Needle biopsy positive. 2/09, begin taxol and carbo and more rt. Rad neck to follow in April.

And you have every right to hate it. Reading your post I could feel my stomach drop as your husband advised you about the lump size and new lump.

You are right - we don't know what it is right now, and you likely won't know tomorrow either. Perhaps its just his body reacting to the treatment??

In the meantime, TRY to breathe deeply and go forward calmly. There is not one thing you can do to change whatever the prognosis will be - that would be like trying to influence the wind.

I soooooooo wish there was something more I could do to make this time easier for you. Know we are here for you. Let us know what happens.

(((((((((((((((ANGIE)))))))))))))))

Donna

There is no question that this disease is like climbing on a roller coaster with no brakes.You just keep on going up and down,when all you want to do is get off and put your feet on firm ground.I hope your news isn't too bad Angie,but all you can do for the moment is cling on for dear life and hope the ride stops soon.

liz

Angie,
Controlling stress levels is the hardest part of your caretaker's job because there is only so much you can do. For now you can get some comfort that the current treatment will take care of anything going on. I send pratyers that this will turn out OK.

Liz - Your description is a classic. You certainly deserve a rest after the past few years.

Angie...You are definately not alone in how you feel. Like everyone here told me when I first joined that I am stronger than I think and they were right. Do I still fret and am concerned with every sore throat, pain, lump or irritation...you bet but in the end Donna is right we just gotta keep adjusting the game plan the game doesn't change just the rules...I hope you find comfort in your friends here and lean on those around you. It's ok to be human. Although being a mom it sometimes feels like we have to be super human. But remember keep your eye on the goal and even though the route may change...the goal is still possible. You are in my prayers and thoughts ...keep posting it helps to talk to others experiencing this journey!!!

OK - doc thinks the little lump in the back of the neck is just a node flaring up because it doesn't like everything going on. And - he says what he thinks Joe is feeling is not the tumor, but scar tissue from the radiation. He said it feels really good to him - and he will be rescanning next week so he can further finesse his RT plan. We see onc on Thursday, will ask him all the same questions!

Thank you all. Sometimes, even just writing it out makes it better. I actually feel like a jerk sometimes for letting it get to me - I am not the one going through it all! And Joe, my husband, has been such a huge trouper. But I am the one taking care of him, and of our 5 year old and 2 year old, and trying not to get fired (my job has been super to me but when you are a young lawyer, billable hours reign supreme and I just worry so much about keeping employed, esp. if H does die)...sometimes it gets to me. Oh - and the guilt of feeling bad for myself!!

OK - so anyway - looks like we survived today! Which is great! And I am in a much better place! Thank you all!

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Husband's history: Stage I sore on right tongue, removed by surgery 7/06. In 1/08, noticed small inflamed node in right neck. Radical neck, 8 positive nodes, cisplatin and IMRT to bilateral neck for 6 weeks. 12/08, large tumor in left neck. Needle biopsy positive. 2/09, begin taxol and carbo and more rt. Rad neck to follow in April.

None of us who have cancer think we go through this by ourselves. You ARE going through it and in lots of ways it is far harder on the caregiver than on us. One day a good friend came into the Radiation room to see how they put the mask on, and what the whole process was like. She told me afterwards that she went back to the waiting room and cried and cried. It was hard for her to see me on the radiation table. It wasn't that difficult for me to go through the treatment.

Do not EVER feel badly for posting your honest feelings. Those feelings are shared by other caregivers and remind us who have or have had cancer what the caregivers go through.

Glad the news today was encouraging. One day at a time. We are here for you.

Donna

You are enduring it Angie- Its hard to watch the lvoe of your life go through these harsh treatments. You are beinga wonderful supportive spouse and Mom holding ti all together. Don't feel guilty about feeling upset. You are human- well actually you are being a super human right now!

We are here for you to help you and support you.

Hopeing for the best possible result


KATE

Angie -- It is hard not to be dramatically affected by all of this, and to react strongly to every piece of new. I told my wife (and continue to tell her) that this disease is harder on the loved ones emotionally than it is on the person with the disease.

Example: Last night, my wife was acting a little "funny" -- nothing dramatic, just a little different. After 26 years of marriage, I pretty much know when she is upset, so after some coaxing, she told me. The brother of one of her law partners died from this disease yesterday. He had posted here a few times back in 2007, but did not stay with the community, and generally did not have a good attitude toward treatment. He had a recurrence, and apparently elected not to treat it. Needless to say, it sent a flood of emotions going for my wife, and I had to reassure her that his situation was different, etc.

We are all only as good as our last checkup. After awhile, it gets easier to deal with that reality, and as time moves on, and the odds shift a bit, the mind eases a little, at least for me.

You are doing great, and glad that the doctor does not think the new issues are anything dire. Keep posting here!

Angie,
I am so glad to hear the results. It's always good to be able to express what you feel. Sometimes just writing or saying the words helps.