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#89702 02-07-2009 10:12 PM
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Pete D Offline OP
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I was just thinking today, as I was in my bedroom with the sun shining in and warming it, my little food pump chugging away as I played with the Quack Pack and then read some light fiction, that life is good, despite the setbacks from this recurring cancer mess -- Of course, it helped that I am still on low doses of Oxycodone pain killer, which helps my outlook to be cheerful for sure!

Even my chilliness is working with me because I can get into bed wearing a thermal undershirt, fleece bottoms, wool socks and a couple of fleece upper garments -- With a couple of fleece blankets and a good sleeping bag spread on top as a comforter, I get nice and toasty warm without feeling overheated.

I have plenty of DVDs on hand, having increased my NetFlix subscription for the recuperation period, plus a friend dropped by and loaned me a couple of season's worth of Boston Legal.

Things could sure as heck be a lot worse!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #89705 02-07-2009 10:55 PM
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Hey Pete!

Do you think that if we all get rats we will develop your great "Rat-attitude"?


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
RPCV #89706 02-07-2009 11:34 PM
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Pete D Offline OP
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Rattitude is in the outlook, sort of a glass half-full half-empty sort of thing -- It can be full-filling or destructive, depending.

From a former life, I have a good friend and colleague who has a bad outlook and is sometimes depressing to be around -- He was dubbed Captain Doom 'N Gloom, always seeing the dark side of things and believing in some conspiracies, like a lung cancer radiation cure that was suppressed by the AMA -- I sometimes have to limit contact with him when I am already in a dark mood myself.

However, studies have shown that having a pet is a really good thing, having a calming effect on the owner/caregiver (unless the pet is too much of a chore, of course, like an active terrier or something like that would be).

Senior citizens in group homes of various sorts show good results with placid pets like guinea pigs and bunnies, or even fish.

Actually, years ago after taking care of our college daughter's two guinea pigs while she was on a trip I was looking into getting some and that's when I stumbled across the rats -- I was very impressed at how tame and inquisitive they were in the pet stores, compared to other animals (including GPs; if they aren't introduced to humans early on, before they open their eyes, they remain somewhat shy).

Right now, the rats are especially interesting to me because they are still in the accelerated learning stages of the young, so we do new stuf almost daily.

But the pets are only part of the story -- It's just nice to be obviously healing and to know that I have at least one taste bud left (I can taste the salt in the saline rinse I'm using for my mouth) -- Next week I should be able to get started on outpatient physical therapy for lymphedema (which will end my visiting nurse visits per the Medicare rules).

I just packed up the 'misting' ventilating machine as I am getting along fine without it (and the cold air really chills me!) -- Still using the suction machine -- Getting rid of this trach tube will be a real treat, but I'm not really ready for that yet, however, I am getting much better sleep without waking up almost choking, hacking on gunk that's built up (Reminds me of waking up as a child in a household with three adult serious smokers -- For a long while, I accepted it as 'normal' that adults hacked and coughed and spat in the mornings).


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #89730 02-08-2009 07:40 PM
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Have been reading your posts and it is great to see you are doing so well.
Love your glass half full attitude or is it half peg full smirk
Glad that your 3 are getting tamer and still giving you heaps of entertainment.
It was so hot here over the week end (over 40 Celsius which I guess is over 100 in your terms) that I sat directly under the air conditioner watching DVD�s with my cockatiel Cookey. He or she (still not sure) is either a great time waster or entertainment for me.
Not complaining about the heat as you no doubt have seen the devastation and loss of life from the bush fires around Melbourne.
Take Care
Gabriele



History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Pete D #89834 02-10-2009 09:05 PM
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You have an absolutely wonderful attitude! If everyone could be as positive as you, the world would be a better place. Good luck with your struggles!

daughterkel #89879 02-11-2009 06:32 PM
Joined: Sep 2008
Posts: 489
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Pete,

Glad to hear that you are feeling as good as you have been sounding and that the Quack Pack is keeping you entertained. Goin gout for therapy next week might make you tired at first so take it easy.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #89997 02-13-2009 07:19 PM
Joined: Dec 2008
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Pete,

I agree with you. I'm also taking some Oxycodone which helps my outlook. I have gotten flowers and cards from my family and friends. My future husbands family brought me water ice, mac and cheese and really cute comfy pj's. Life is good and love to all!!


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #90047 02-14-2009 07:55 PM
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Pete D,

I would just like to say that you are a wonderful source of information, support and encouragement. I've only just found this forum and you have been a wonderful help to me. I wish you the best and with your attitude I'm sure you'll be fine.

Kelli

daughterkel #90144 02-16-2009 04:19 PM
Joined: Sep 2008
Posts: 489
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Pete

How was therapy today?

There was a young girl on TV a few minutes ago singing Ben (an older Michael Jackson tune I think) wasn't that a movie about a rat?

How are the rat games coming along?

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #90151 02-16-2009 05:54 PM
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
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Therapy is good; I can see the leg swelling considerably reduced and she's loosening the scar -- OTOH, the neck is going to take a while!

The rats are doing fine -- I may try some clicker training with them.

Here's how one woman deals with the stresses in her life -- Apparently she missed boarding her flight in Hong Kong:

http://www.youtube.com/watch?v=P3E-PAPiuyE


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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