#8805 11-18-2006 02:46 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Mike had surgery yesterday to take the peg tube out. What a happy day it was.
The PEG tube was the last visible reminder of being a patient.
We were able to full body hug for the first time in months! I forgot how wonderful that is and starting crying. No more leaning to him for a hug. No more being careful I might knock into it or yank it by accident. He is elated to not have to pin it up on his shirt, tape it down, clean it,,, all that maintenance stuff.
Having the PEG put in before treatment was the right choice for him. Despite the fact that he could eat or at least swallow the formula during most of the treatment, the few weeks at the end got pretty rough. The peg was there to use and we're sure that's why he did well.
Just wanted to share the good news and now I am going to go hug him again.
Ginny
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#8806 11-18-2006 03:01 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Very good news Ginny, it's a big step forward. We had the same reaction when Jack goes his out - grateful for the good results but happy to see it go after 7 months. I didn't realize how much we were compensating for the PEG until we didn't have to anymore. Go give him another hug. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#8807 11-18-2006 04:12 PM | Joined: Nov 2006 Posts: 7 Member | | Member
Joined: Nov 2006 Posts: 7 | Hi. I'm new to the forum. Congratulations - it's one of the many days I look forward to. I was operated on 10/5 - partial replacement of my front jaw (7 teeth removed) and the floor of my mouth. I just started chemo and radiation this week. Any hints on how long before I eat or get my tube out. Don't worry - just looking for ideas - not promises
SCC-floor mouth/partial jaw removal on 10-5-2006. Thanks for sharing all the info. Hopeful, determined & anxious!
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#8808 11-18-2006 05:49 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Joanne, Mike says thank you for the xtra hug!
mpmurphy, Hello and welcome to the forum. Although Mike did not get surgery, only chemo and radiation, he got the PEG on 06/23/06 and out yesterday. He is slowly tasting and enjoying more food everyday. The docs say each person will be different, I believe that the fact that you are looking forward to and picturing yourself eating again will help you to get there.
The support you will receive from this forum will help you over the rough times as well.
Best wishes to you and please continue to post.
Keep picturing yourself at the end of the rough times and it will give you the courage to fight thru them.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#8809 11-19-2006 02:05 AM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | Congratulations are in order,
I felt quite the same when that little appendage was pulled out, I had had enough of the smell, the leaking, the taping it to my chest, all gone in an instant with one good tug from my doctor. I did not have anyone to hug, and that sucked but none the less it was a step forward in recovering. I am almost back to normal after being run through the wringer. Keep pushing ahead my friend it gets better daily, keep telling yourself that.
Lenny | | |
#8810 11-19-2006 02:26 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Mpmurphy,
Please tell us more about your chemo and rad, like what kind(s) of chemo, when to be given and what type of rad and frequency. It will help us when answering.
Welcome to the best thing to help you on your upcoming journey.
If I were you I would post your question on a seperate post under "Currently In Treatment".
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#8811 11-19-2006 05:05 AM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Lenny,
We thought Mike's PEG tube removal would be a simple yank by the doctor too. It was quite a surprise to find out he had to go to outpatient surgery, get general anesthesia and pull the inside anchor plug out by going up and out through his throat. The tube then was pulled out from the outside.
They called this a Esophagogastroduodenoscopy.
(I'm thinking supercalafraglistickexpeladosis!)
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#8812 11-19-2006 06:38 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Congrats, I remember when I got mine out and how good I felt about it being gone. I must say mine was a simple snip of a stitch and pull it out. Either way glad Mike's is out too!
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#8813 11-19-2006 02:25 PM | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 166 | Great news! He will be back in that truck before you know it.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07  | | |
#8814 11-19-2006 04:15 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | To the "MikeG's-that Esophagagosastroduodenoscopy probaby allowed the surgeon and hospital to charge $10,000.00 for the word alone  , and then the Ins. Co. only paid $950.00 :rolleyes: Glad to know that it is out. Keep on going guys! Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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