#8701 10-29-2006 02:54 AM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | While working on our "Getting Through It" project, I have become aware of the hundreds of OCF members who never post. To those of you who do not contribute (yet), consider the following:
1) There are NO stupid questions about cancer.
2) All of us were new at one point. Take the plunge and post a question to the group, or a response to another post. We need your words.
3) Some folks refrain from posting because they feel that they know too little about this topic to actually write anything down. Not true!! If you are touched by this disease - YOU ARE QUALIFIED to have an opinion, a view, a question.
4) It is really, really reassuring to hear what others think and feel about this issue. Your words might reinforce someone's view and make them feel better. Your words might challenge someone's view and make them think more about it. Your contribution, no matter how large or small is what makes this site work!
5) This forum is not just for veterans to post upon. The forum absolutely depends upon YOUR words, YOUR idea, YOUR question, YOUR reaction.
Jump in. Take a chance. You are part of this family too. No fair sitting back in the shadows forever - step up and post. We need you!!
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#8702 10-29-2006 07:37 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | How true, Thank you Tom for that post! We need all of YOU!!!!Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#8703 10-31-2006 04:32 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | I'm just kicking this back up the list.... TJ
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#8704 12-11-2006 08:03 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Great topic Tom, Put another way ,Why do I post? After my doc threw out all the dreaded stats at me and after yrs of dealing with it-- I realized
7 out of 10 in my boat are dead in 5 yrs.
1 out of the surviving 3 will probably get a secondary cancer.
Well that leaves me and the other person to raise awareness and then it hit me that the other person may not be as lucky as me and they may have lost their tongue,voice, or had disfiguring surgery and are afraid to bring notice to themselves. Well I strongly believe that I owe it to the other 9 people not as lucky as me to help keep there cause alive.
Tom I hope I can shed a little light on this matter because it truly deserves it, we all need each others support and guidance.
Mark D.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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