| Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | I really hope you are right about the aprehensiveness...Gosh I feel so much like I am on unchartered waters yet I know there are those who have travelled them before. Still we forge ahead day by day hoping that it was nothing or we didn't miss a turn. Today is much better and I think I do over react for the most part but when it comes to cancer I can there be an over reaction? It's just I can't believe how crappy I felt yesterday...now today with a bit of getting out and moving around things seem to be less still a small pressure but not real noticable only when I concentrate on it can I feel it...So it is like that old saying if a tree falls in the woods does it make a noise. If I have to concentrate on a pain or a pressure to feel it is it really there...hmmm I wonder...so for today I will just continue on and the best I can do is monitor write down and ask when I talk to a professional.
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | My ENT told me "YOU are the expert on you!"
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | That is a great great relationship...I keep teasing my doctor I am two weeks shy of graduating and being a doctor..He just laughs we are really not that close...
But yours is a good relationship...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | The human body is wierd indeed. Amazing machine all on it's own. I guess issues for me always happen on a weekend or holiday. I must have been having a really bad day the other day for the pain to be as bad as it was. Today seems a lot better still my ear is not painful but it grabs my attention once in a while when my mind is idle...lol...I am still not ruling out an infection though...so I will contact my nurse and check things out if I still have this after my physio tomorrow...Thanks everyone for your support...but infection or fluid from the removed nodes sounds like pretty reasonable answers...but only the doctor would know that
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | It's hard not to over react when it's your own body- especially when, in the early post Tx, we're all waiting for the other shoe to drop. I started noticing parts of my anatomy, like the salivary glands alongside the cheeks and thought they were a new tumor. My H&N surgeon and I had a good laugh over that one (after the fact of course).
I had to take prednisone only a few months ago for a fluid buildup that just wouldn't go away. ENT's can easily see this with a simple otoscope exam. Sometime the swelling jams up the eustacian tubes and an anti-inflammatory, like prednisone, is the ticket to reduce the swelling so they can start draining normally again. Antibiotics don't work in these cases.
If your eardrum does rupture you will know it. First, the pain will stop abruptly and your ear will drain blood and pus for a while. You want to avoid this as ruptured eardrums will decrease your mid range hearing sensitivity. This is good enough reason to get a faster appointment with your ENT.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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