#82470 10-21-2008 03:22 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I now have two almost-hidden lesions near the join of my new and old tongues (Old tongue has inflamed swollen spot with small, hard blister on top -- New tongue has hard, bright-white, scar-like protrusion) that just fit the Two Week-No Improvement test (The little, hard blister has partially receded) -- They are sensitive, hurt, make my lower jaw ache slightly and cause a slight ear pain.
They don't look or act anything like my previous tumors, but the power of denial is strong and I find myself making plans with some near-future surgery in mind... Am somewhat tense and distracted, but one silver lining is that I know why!
Unfortunately, I only noticed them on the night of my last followup visit, so two Docs and I examined my mouth and didn't see them!
Doc Haakenslash has scheduled a CT (and PET??) tomorrow before an office visit with him, also tomorrow, and a good friend will accompany me in case I have anything more than a punch biopsy to endure.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Hey Pete,
Sorry to hear about this recent concern, but hopefully it will turn out to be nothing worrisome! Good luck tomorrow with Dr. F. I'll keep you in my thoughts.
-Tricia
P.S. Beautiful day in the Northwest today, wasn't it?!?!
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Pete
Best of luck tomorrow. Will say a prayer for you that its nothing serious.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | As I posted on another string or whatever they are called I too am going to see good old doc...you stay positive and I will stay positive and tomorrow we will laugh together. But better to be safe than sorry
My husband is coming with me but he isn't much help in the question dept...he usually disappears when the nurse comes and well I think he has enough of his own issues so pray that I am sharp and the note sent by my nurse is clear enough
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
Pete,
Good luck tomorrow - we'll be thinking of you.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 |
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | You are in our thoughts, Pete. Hoping it is just scarring/inflammation, or one of the other dozens of things it could be!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hope all went well and we hear from you soon. Would be great if the news is as good as what Dianne got.
Cheers
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Pete
Hoping all went ok for you, sending you prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Good news!! Nothing on the CT scan and Doc Haakenslash said his alarm factor was very low after seeing and palpating, however, he did take a biopsy (Just reached in a snipped, not much pain) of the white one just to be sure -- The other was soft, so no problem -- He believes both lesions are from irritation because they are at the end of my lower teeth.
I have to say that I didn't expect bad news, but I was prepared to receive it!
Interesting side note -- I requested, as usual, a copy of the CT scan from the Radiology department -- They informed me that new policy was to charge $13.50, plus tax, and I had to go up to pay cashier and then come back. I did -- Good thing, because when I got to the Doc's office, the scan was not yet up on the network and we used my CD to look, so I got to hear the comments of two Doc's while looking at it and asking questions!
Second note -- This was my first scan at UWMC and they are using GE machines, producing about 500 slices -- Previous scans were with (older?) Siemens machines and they were only producing about 267 slices.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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