#8201 08-28-2006 03:05 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | Gary,
Congratulation. Yours is quite an impressive achievement. Thank you for your help and dedication to the OFC and its members.
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#8202 08-29-2006 06:03 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Gary,
I just want to thank you for all the time and effort you devote to this forum. Your vast knowledge and research ability have helped so many. We all really aprreciate it.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#8203 08-30-2006 09:30 PM | Joined: Nov 2005 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2005 Posts: 79 | Gary - Thank you so much for all the help you've provided to John and me with your thorough research and your open and straightforward comments and answers to so many questions. Two thousand helpful and caring posts in an astonishing achievement and such a wonderful resource for the many people who visit the site.
Caregiver for John SCC left tonsil Stage III/IV dx Sept 05, tx started Oct 21/05 -IMRT 35, cisplatin 3 X 100mg/m2;completed Dec08/05.
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#8204 08-30-2006 10:29 PM | Joined: Aug 2006 Posts: 12 Member | | Member
Joined: Aug 2006 Posts: 12 | Gary,
Although I am new to this site, I am overwhelmed by the quality and quantity of information I found here. As I read along and see the research you do, and the time spent unveiling new developments, and the sharing, that helps so much, I am warmed.
When I feel like I am alone in the world, awake in the middle of the night worrying, and my family doesn't quite get understand my tensions, I sign on here. I find good information, friends, compassion, and sharing.
I applaud you Gary for all your work, and also you Brian for this site, for all it has given me. I have already shared the website with two friends who are going thru similar battles here in New Jersey...and found all of you to be a source of strength. Knowledge is key in our battle..and you all share that....First hand!!!
God Bless you Gary, for your unfailing dedication, and you also Brian..for bringing us all together as warriors in a battle we expect to win. And Love and prayers to all the rest of us who sign in to share stories, information and hope to each other.
Thank you.
You are in my thoughts and prayers.
Nanci
*******************
SCC - Early detection. 1/4 of Tongue Removed, left side. Following carefully.
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#8205 08-31-2006 02:42 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | For a meek, timid guy like you, Gary, that is certainly a lot of hard work.  I appreciate all that you do and the insight you have always provided. I know life hasn't been the same since the big C but it certainly has been better after meeting you! Congratulations on your spirit of helping all of us heal. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#8206 09-01-2006 05:48 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Gary,
Keep up the good work. We all rely on your vast knowledge...and thank you.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#8207 09-01-2006 06:35 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Gary, Congratulations! You were one of the first people to reply to me when I first posted. I thank you for all the help you give here.  Take care Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#8208 09-01-2006 09:49 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 72 | Gary,
I'll add my thanks to the long line here! With every post you help so many. Your unselfish support of this board is priceless. A thousand thank you's is simply inadequate. You, sir, are a hero.
Blessings -- Carol
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#8209 10-20-2006 08:10 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Gary in a world of fear and uncertainty it is comforting and reassuring to know that we have someone to turn to. Your efforts are appreciated by so many. I think Carol said it best you and Brian are heroes to so many. Thank you!!
Mark- New guy on the block.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#8210 10-20-2006 06:46 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Gary - Congratulations and Thank you!!! Well done. TJ
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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