#80679 09-18-2008 04:57 PM | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | Did 6 weeks of once a week chemo Erbitux carboplatin Taxol Then 2 week rest Then 7 weeks of radiation ith double sessions on fridays plus dailey chemo Cisplatin on weeks 1 4 and 7 Drove myself 60 mile roundtrip the whole time But like ive read i feel the worst now that treatment stopped Darkest before the dawn i guess. I got all the bad crap massive amounts of mucous sores on tongue and back of throat. I have a feeding tube but cant get in 6 cans of food and 48 oz of water even taking all day uing the feeding pump on slow i think my stomach has shrunk o much. I got a home IV Care set up today o i can give myelf a dag of fluid every day so i can maybe get more food in my peg tube. Anyway i made it this far thanks alot to all the people who post their experiences here
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Victor:
Congrats on finishing your treatments. Now is the time to rest and heal. This bad spell doesnt last too long. Try musinex or robotussin for the mucous. If you dont have magic mouthwash askl your doc for some, it will soothe your mouth.
You could try turning up the feeding volume and using it while sleeping. Just make sure to sleep propped up on 2 pillows. If you put 4 cans in a bag and run it all night on 60 you will find it much easier to get the rest in daytime. Or even a combo of 3 cans formula and 1 or 2 cans water. Dont forget to try to swallow a few sips per day if you can.
Best of luck to you during this darker stage, it will get better soon. You must be superman driving yourself thru all you have been thru, dont let this little bump affect your remarkable strength.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | What type of formula are you using? You may be able to find one that is higher in calories so that way you have to do less cans??? After treatment is always the worst. I felt bad for about a week and a half after, some people feel bad longer. I'm over a month out now and I deal with getting tired easily. My stomach felt like it shrunk a lot during treatment, it was used to getting just a little bit of food constantly throughout the day but once I started eating by mouth again it didn't take long for it to stretch back out! I just had to eat a bunch of small meals at first. For the mucus in your throat try Robitussin to thin it, and as for the sores on the tongue the only thing that helped me was morphine (I couldn't even swallow water because it burned my tongue). But the side effects will get better, you just have to be patient.
Congrats on being done! And I have no clue how you managed to drive all the way through!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Way to go Victor. Just a few more weeks and you'll walk out of that damn tunnel for good.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
| Forums23 Topics18,170 Posts196,933 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
