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#80329 09-12-2008 06:37 AM
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My husband really wants something to look forward to, and I can't blame him. Would it be foolish to plan a weekend trip to Florida about 5-6 weeks after his treatment is over? I know everyone responds differently to treatment, but I just wonder if such an idea is completely out of the question. Thanks for any advice!


Caregiver to husband, 44, nonsmoker, nondrinker
Diagnosed 7/15/08 with BOT SCC, stage IVa.
Two positive nodes removed
Cisplatin and erbitux ended 10/15/08
Radiation over 10/20/08
Back to work 11/24/08
PEG out 12/9/08
Scans 12/2008 and 3/2009 Clear
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I went on a vacation at about a month out and it was the best thing ever (getting away from hospitals and doctors and cancer was much needed at that time), but I recovered from my treatments really fast. Also, you may want to take into consideration that he is going to have to stay out of the sun for the most part because of his radiation. But walking on the beach in the mornings and evenings in Florida is always nice! I would just say that if you do plan a vacation to be flexible just in case things aren't progressing very fast in the healing department or be ready to have a relaxing weekend just hanging out and not doing too much.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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Oops, I forgot about the whole sun problem. Maybe a nice bed and breakfast in Vermont would be a better choice! Thanks for the tip!


Caregiver to husband, 44, nonsmoker, nondrinker
Diagnosed 7/15/08 with BOT SCC, stage IVa.
Two positive nodes removed
Cisplatin and erbitux ended 10/15/08
Radiation over 10/20/08
Back to work 11/24/08
PEG out 12/9/08
Scans 12/2008 and 3/2009 Clear
Joined: May 2007
Posts: 666
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Wendy,
it is a good idea if he feels up to it. Re sun you do not want to get sunburnt especially not on your neck! However you can cover up (Hat, shirt etc). We were in FL too after about that time (also in Sept). Just make sure that there are other things to do than just roasting on the beach..


Best
M




Last edited by Markus; 09-12-2008 11:24 AM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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yeah, it kills me to not go out in the sun. I used to be a lifeguard and LOVED sitting out in the sun all afternoon. I haven't been swimming at all this summer (I was diagnosed at the end of April and finished treatment at the end of July). but I do plan on going as soon as my peg tube hole heals up (comes out Monday!). I would think as long as you aren't on the beach in the hot parts of the day and he covers up and wears super sunscreen you should be fine. My husband and I went to the aquarium one day on our vacation so you may be able to find something like that to do. Or maybe you could find a bed and breakfast that does massages and stuff! That could be relaxing!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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If you go, there are several companies that make clothing with built in sun screen.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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I wouldn't have enjoyed a vacation 5 to 6 weeks post Tx as I was still weak as a kitten and my taste, appetite and dry mouth were horrible. I also looked like I had been on a starvation diet as I lost 30% of my body weight and I had none to loose going into Tx.

Point is we all can react differently to the same Tx so I just wouldn't plan on anything. If he's finished and he feels up to it, fine but if he doesn't then it won't likely make him feel better.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I think it's a great idea. I went to Naples exactly 2 weeks after my last treatment. I told my med onc about it and he gave me a raised brow look, forewarned me how I might feel, but basically said it was up to me. There were a few rough spots, but for the most part, it was much needed. I ate my first steak on vacation, and although I couldn't taste it, was very proud of the accomplishment. My husband also upgraded to first class on the flight with miles, so that was also nice. My only recommendation is that the place you rent has working air conditioning. My mother in law(where I stayed) never turned hers on, and there is nothing like being nauseated in the florida heat. I had a few bouts and could have used a cool place to lay down. Regardless, I think it is a good thing to plan for. The mind is powerful. If I listened to my MO, I may have stayed at home, in cold Michigan mind you, drinking my boost and wallowing in my sorrow.


SCC tonsil(left) with contralateral mets. Modified right neck disection August, 2002. 33 rads(62 gy)both sides of neck and 3 cycles cisplatin completed October 25, 2002. 34 yo at time of diagnosis
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Wendy,

First of all, good for you for looking ahead! That's great. From where I'm sitting, almost 4 weeks out from treatment, I'd say go for it! But with one caveat... make sure you can cancel your flight and exchange the tickets so if your husband is feeling too lousy to go, you won't be out a lot of money. I had planned a trip between surgery and radiation which I had to cancel when my PEG tube got infected - I decided it was best to not get on a plane with an open, oozing wound - so I canceled my flight and got a credit for the ticket. I think I'll pay $50 when I reschedule, but that's not as bad as losing the whole $500 that the ticket cost.

Last edited by margaret_in_ma; 09-12-2008 07:15 PM. Reason: spelling

Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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We own a very expensive piece of paper - tickets for a holiday that we were supposed to go on in January of this year. We had to cancel due to radiation but had purchased travel insurance.

WRONG. The insurer denied the claim because my condition was not "stable" for 90 days prior to travel. Be very very careful about thinking you can get travel insurance.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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