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| Joined: Feb 2004 Posts: 43 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2004 Posts: 43 | I agree with Markus. Doctors like everyone else prefer to do what they are used to. The big problem with cisplatin is the side effects. If you can get 7 smaller ones rather than 3 Standard, go with the 7! If you can go with Erbitux go with it! Anyhow in my case, it could said that the cisplatin didn't really work. All this said, It's just my humble opinion! Best of Luck! You'll get through this! Tom Roussell
SCC Tonsil Rt T3 N2b M0 side DX Jan 04 Tx 36 Rad 3 cisplatin Tx ending May 04. partial neck dissection july 04..... July 15,08 mets to liver Age 57...Did Methotrexate Sept 08. Now on a trial drug Panitumumab, Feb4,09 treatments stopped. going to Tibetan Medicine.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I had the 3 big doses of cisplatin. My doc cancelled the 3rd dose so I only had 2 doses. After the first one I was ok til the end of week 2 then I was pretty sick. The second dose was cut down and about a week after the second dose I felt pretty bad. My blood counts dropped and I was so week that I needed a wheelchair. Smaller more frequent doses are easier to tolerate.
Watch out for a big side effect, hearing loss. Get your hearing checked before you start it and pay close attention to your hearing. Thats one side effect that I didnt get. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | With the weekly treatment, I did not get the impression that the chemo caused major problems, although it is difficult to separate its effects from those of the radiation. At least I could not time anything specific to the chemo days.. As Christine says watch out for the ringing, it may happen quickly even if given lower doses. I definitely had it already after the first infusion then it went away and got worse after the second time. Then we switched to carboplatin which is not (as) ototoxic.
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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