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Joined: May 2008
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Joined: May 2008
Posts: 43
im 4 weeks thru radiation i spit up gobs and gobs of mucous saliva all day and night. It seems to com out of the sinus like but my nose isnt stuffed up. But i have to like suck air up my nose like the slang term hawking up a luggy. Suck air up nose then hack out the flem from what seems like the roof of my mouth way back. Sometime i get a little blood . I spit up mouthfulls all day and night sometimes every 10 minutes
It does seem to be more frequent when im feeding or getting fluid thru my peg tube then its ususally a foamy kind of spit
sometimesd its like the yellow snot you get with a cold.

Other than that i just have one spot on back of throat that keeps me from swallowing it feels like the front and back of throat are rubbing together if i try to swallow even a drop of water.
Other that massive amounts of spit and cant swallow im doing good.
Oh yea neck kinda burnt bad and open sore where the skin kind of folds.
SO massive amounts of spit, cant swallow , burnt and sores on neck oh and cant talk except in horse whisper other than that im doing great.



Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
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You got me laughing with those descriptions. LOL I think you are going thru what might be considered normal for most of us. Good luck and keep up that attitude. You are gonna whip this.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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YIKES! You brought back some bad memories of those lugies! Try some Robitussin if you haven't already to thin them some and make them easier to hack up! My mucus problems didn't hit until week six, and they lasted a few weeks, but it's better now, so hang in there, better days are ahead! My neck healed up really fast after treatment, probably in about a week or two. Keep it from drying out! You seem like you have a good attitude towards everything...keep it up, it will help you in your recovery!!! Hang in there!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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Victor:

Congrats on finishing the treatments. Hopefully you are feeling a little better except for the neck and excessive mucous. That will change very soon. For me, first came the gobs of mucous then came dry mouth. Both can be bothersome but it does get better.

I also went thru a period where I couldnt talk, mine lasted abotu 3 weeks. Hope yours gets better soon, writing everything can be such a pain. Do you have something to put on your neck? I used the beta-val cream and covered it with gauze when it was like that. I dont have even one scar now, it healed perfectly which amazed me. Wishing you a speedy and easy recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Victor,

I am right there with you, buddy! I don't want to leave the house because its just not right for a 'lady' to be spitting so much! Its getting really tiresome. I've heard tell it will get better, but so far I see no evidence.

**excusing myself to go spit again**


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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oh the things i have to look forward to ... smile

you all make it sound so appealing ... or is that spelled appalling ? LOL

I have this sneaky feeling I am going to make myself sick watching myself be sick through all of this... I have like the weakest stomach and will throw up if someone else does etc ... so I have a feeling I will be making myself sick hockin loogies ... ohmeohmy LOL

Can't they make radiation a bit more user friendly? smile



Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.

===============================

"Those who think by the inch and speak by the yard, should be kicked by the foot."


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Victor

Your post brings back unpleasant memories. The good news is that sooner than you think it will be just that: a memory of an unpleasant time. Even better news is that that memory will fade. My mucous flow was so bad that I had to carry around with me everywhere a "spit bucket" (a cylindrical cooler 12" tall with a 6" wide mouth) It came in very handy in the waiting rooms for radiation and doctor visits as all to often the bathrooms were full or occupied plus I would have have been in there every five minutes, not to mention the car rides to and from those appointments. I was so relived when my condition improved enough (two weeks AFTER all radiation) to "graduate" to a "spit cup" (one of those over sized coffee travel mugs)


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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