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Joined: Jul 2008
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I have been a lurker for quite some time and would appreciate this board's excellent response rate to address a question of mine. I want to plan for round the clock care for my mother but don't know what to plan for.

My mother is one induction therapy chemo treatment down with daily radiation treatment to follow in a few weeks. She needs regular monitoring of Coumadin (blood thinner) for her blood sugar (non-insulin dependent diabetic). She is on heavy doses of medication for the pain of her tumor and driving has been very limited. Due to the picc and the peg, she can't easily do things like showering and cooking; she seems to be unable to flush either of them out.

I worry about the approaching daily treatment and its effects on an already challenging care situation. My mother lives alone and almost an hour from the hospital. Family has been staying with her during treatment and she spends some time alone when she feels well enough. As we begin daily treatment, I wonder how we could ease the situation by moving her to a temporary place closer to the hospital.

What have been your experiences with short-term housing; what have been the benefits and the downsides?

During the toughest part of the treatment, is an hour to and from the hospital too much for the patient? Will she benefit from being closer to the hospital?

Thank you in advance.


Daughter (30 yrs.) to awesome Mom (67 yrs.)
Diagnosed 7/2008 with T3or4N3cM0, squamous cell carcinoma.
Completed induction chemo (TPF) 8/08 and radiation/chemo 11/08. Successfully removed tumor via neck dissection 9/09 and went home from hospital in good spirits.
Joined the Lord Oct. 2009.
Joined: Jun 2007
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Now thT IS tough question to answer. I would say it depends on your Mother and how much she can tolerate. I live by myself and have gone thru this whole process alone , cooked, washed clothes, drove to Dr appts. and at times I wish I had someone to help, but I made it and got better and stronger daily.What does your Mother say about her condition? I feel sorry for this decision that has to be made or rather for you for having to make it. I was stationed in DC at Bolling AFB years ago in the Honor Guard and Drill Team. My son was at the Naval Base right next to Bolling in the Navy Honor Guard. Good Luck with your Mother and what you do.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Depending upon where she will be treated, they may have on site living quarters available just for these circumstances. Moffitt had an entire "hotel" within walking distance that was available for free if the patient otherwised qualified.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I see that you are in VA...me too. My father was treated at VCU Medical Center in Richmond and they have a hospitality house. We did at one point consider it, especially when they were discussing radiation twice a day. He never used it though, but it seems quite nice. If you live so many miles away from the hospital you can stay there. I'm not sure where your mom is being treated in VA, but it certainly would be something you could look into. I think most big facilities have something like it close by.


CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.

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