| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I think I have a good case against a Dr for telling me my cancer was gone and no rads or chemo needed. Right after that is when I had to have my teeth removed and the rads seed implants put in. I will suffer the rest of my life from this diagnoses . Not a lawyer will take on the Ohio State because the State Legislature made it tough to beat anything involving the State. Had chhemo at the same time as rads to get ready for the implants. go figure LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Liz:
Dont doubt yourself. You lost your husband due to this man's ineptness. If he had done things correctly, you wouldnt be considering any of this.
Your voice is one that will open many people's eyes to this type of cancer. It may even save someone else. Your husband wanted this brought out and you are honoring him by doing so. Your voice is a voice for all of us, thank you.
Christine
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Liz.. I don`t envy you your oncoming battle. Unfortunately in the UK there is still the the old 'Doctor/ Father/ God ' brigade to get by. Do not lose the "fired up" feeling .. that`s what they count on.
I lost a young cousin because his doctor gave the family the old "give him two asprin and I will see him in the morning routine" when this guy did show up he was drunk. He is now practicing in Canada.. God help them!
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I wish this were transpiring here in the US - last year I was an expert witness in several cases, in all of which the doctor involved lost the case, or the insurance settled out of court before the court date. Not having social medicine here in the states makes it much easier to go after an individual for their actions. In two of the cases the doctor's insurance not only had to pay the damages for loss, but in those cases they refused to insure the doctor again. This means that he is out of practice forever since it is not possible in this country to practice without insurance. If any of your consultants or solicitors would like to communicate with me regarding data about the impact of late diagnosis, failure to diagnose, failure to refer, or failure to meet standards of care, I would be pleased to talk or email with them.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Brian those are the words i hoped i would read.Thankyou very very much,and i will definately be taking you up on that offer in september when the General dental council make their final judgement.At the start of the enquiry the dentist was required to provide proof of his insurance,and was told if he didnt he could be punished for that as well,but he has insurance so that is good.
When this is all over,i would very much like to liase with you regarding getting this information out to the legal fraternity in the UK.
many thanks
regards liz
Last edited by Cookey; 07-02-2008 10:11 PM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I didn't add that I had to get Rads-chemo combo before I had the implants and before my teeth were removed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Oops, LOL, teeth out before the rads and chemo, not after.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | [quote=Cookey]Brian those are the words i hoped i would read.[/quote]
See Lix, it's not what you know, it's WHO you know!
Good Luck... get em !!!
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Wow I know how you people are feeling, I too had a misdiagnoisis from a urgent care clinic doctor told me it was an irritation from my dentures and gave me a mouth wash to cure it. It started to feel better so I figured that was the solution. My gut feeling didn't agree with what he was saying as it flaired up and seemed to get more tender and bigger. I visited my denturist who immediatly hooked me up with an oral surgeon. Everything has just been a blur since that appointment. Tests, biopsy and minor surgery to no I am being treated at the Cancer Center in London, Ontario. They seem confident they can cut it all out without having to have radiation. Surgery is set for 4-5 weeks pending a cat scan. I am to have a bi-lateral neck dissection and still am not sure what I am up against. Best of luck in your battle on every level.
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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