#77817 07-31-2008 03:00 PM | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | Today was Rad 12, so the best third is now behind me.
Last night, that �frog� that showed up in my throat the night after Rad 8 grew claws!
Bad night. Every twenty minutes I kept trying to drowned the �frog� with ice water. Apparently even throat �frogs� like water.
I had to pee a lot.
This morning I managed to down a cup of coffee and "wow", the throat �frog� retracted her claws. Maybe throat �frogs� don�t like caffeine!
Ya, I know she will be back tonight fortified by Rad 12!
But, for at least another day I remain out of the clutches of the throat "frog", free of the dreaded PEG, lunching on tacos and guacamole.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | That is the feeling we all get I would say. The rads and chemo combo can tear your throat up and make you blink a few times. They sure kept my attention. Having lost my teeth didn't help either. I forced my self to drink the hot coffee but had to add cream for a few days to get used to it again. Maybe that frog had his relatives with him last time . If so they like to party and dance with cleats on their feet. Good luck with this stuff. They do tapdance pretty good at times. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Don...
you have a female frog??
I was drinking coffee, pretty much to the end of IMRT. Although it did not taste like much. Vanilla and coffee flavor persisted the longest. Also, at the end the coffee was luke warm and had tons of half/half in it. Even so I needed lidocaine. In retrospect this was probably not all that smart!
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | Markus Yup, I am pretty sure it is a she frog. a mean and wicked one she is and I am afraid she plans to stay a while and make my life a living hell  but not yet, not today.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | some one suggested slippery elm tea with raw honey they told me 4 capsules of slippery elm and 4 teaspoons of raw honey in hot water take every morning before rads
So i went out and bought me some today will be drinking it tommorrow i will be my 4 th rad day and i get two rad treatments on friday
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | Victor,
I have never heard of "slippery elm tea capsules". Where did you go to buy them?
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | whole foods store gnc didnt have them it comes in powder but i was told empty 4 capsules with 4 teaspoons of raw honey and hot water
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | PLEASE TELL YOUR DOCS WHAT YOU ARE INTENDING TO TAKE.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Get used to the peeing because you will drink more water and liquids from now on than your body can imagine. At times post Tx I was up 4 times each night. It's better now at 2 TPN.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | My frog woke me up at least six times a night during the last half of TX and would be banished only with the fizz of seltzer water. I used the cans as the big bottles lost the fizz too fast. Our recycling bin overflowed those months but nothing else really cut the mucous or soothed my throat like seltzer. Everyone is different though so it may not work for you guys, but my doctors thought it was just fine so long as it worked. Hang in there.
tom
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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