#76432 07-02-2008 04:34 PM | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | For a couple of days, I have been thinking about you Minnie and I believe your last post was June 6 so it has been long time. Your OCF buddies would like to hear from you and if you are feeling lousy..can your daughter(s) let us know something??
Sending hugs and prayers,
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Deb .... I have been thinking of Minnie too, the last several days - I hope she responds soon. Ditto on the hugs and prayers! Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I miss Minnie's post too. I hope we hear from one of her family but would rather hear from her.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Minnie's been in my thoughts too. Would love to hear an update from someone if she doesn't feel up to giving one herself.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Has anyone been in contact with Minnie or her family recently? I sent a PM on the 23rd. I have been very worried because she usually posts even if the news isn't great. We haven't even had a post from her family.
I just sent an email to one of her daughters. I asked her to respond on this thread. Perhaps we will hear from her soon
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I sent her a quickie email yesterday and haven't gotten a reply. I do hope all is well.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I sent her a snail-mail card several days ago. I just wanted her to know my thoughts are with her. I can understand why it might seem like too much to check in here at times.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hello
I sent her an email on the 13th to tell her I was thinking of her
on that day she had chemo. I have been checking every day to see if she will post. She usually does. If her girls are checking on here, please tell her how much we are thinking of her!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Hi everyone,
I hope you all know how important your thoughts and prayers are to my mom. Your cards and packages make her days easier. She has a great supportive family to fight with her, but it is you guys who truly understand what she is going through.
Mom is doing well. Her second round was hell compared to the first. She was hospitalized after a few days with the 5FU pump. She couldn't breath normally and wasn't able to make sense of anything that was going on. It was pretty scary, but they stopped the pump and within a few hours she was feeling better. She kept saying she felt drugged (which she was with all the chemo and other meds). We had to stay over night in the hospital because the Dr thought she had pneumonia. The nurses treated her horribly as did the doctor who was there. It was a really awful. We got her home so she is doing a million times better now.The fatigue and bone pain have lessened so she is able to be more active. She even drove a mini-racecar when our family went to Motor World for the fourth. One more round of the chemo and then we can see if it has done it's job. Her voice has come back and she no longer chokes all the time those were symptomatic of her new tumors so we are feeling optimistic.
I wish mom could write this herself, but her neck is so stiff she has a hard time using the computer. That medi-port has given her so much trouble, we can't wait to get it taken out.
Again thank you all for your thoughts and prayers, trust me mom can feel them.
With Love from Mom,
Amy
Last edited by Amymcca; 07-05-2008 10:16 PM.
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Great to hear that she is on the mend. Your Mom is a big part of this community, and we are all rooting for her!! Get back soon, Minnie!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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