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Missymoo #73958 05-02-2008 10:45 AM
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My prays are with your family. Lets hope that his plan works.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Missymoo #74005 05-05-2008 02:03 AM
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Well, my Dr in Columbus that did surgery to remove part of my tongue and did a left neck dissection told me that I didn't need radiation or chemo because he got all the cancer. This with 1.5 mm margins. Had a local RPO send me letters and call to tell me that the 1.5mm margin was way too close and the cancer would be back. To make a long story short, it was back in less than a ,month. The 1st Dr finally said it was back after a couple of biopsies and on both sides of my tongue. He did what he could do then agreed that I did need rads and chemo. I got those from the local Dr and was treated agressively. Had rads and chemo for 4 weeks, had to have my teeth removed, then had to have rad seed implants in my tongue. This is a very painful procedure but I had no choice.The surgery for implants was the 29th of Feb and I was out of my mind for a few days. LOL almost ended up in a rest home until I recovered. Hell, I beat that and was called a miracle patient. This was done in Wheeling, WVa by the RO that said I needed rads and chemo. I feel that I should have a case against the Dr in Columbus for his mistakes about rads and chemo. Maybe it was because of my age or the cancer study I was in??? This goes to show that the big guys screw up frequently too.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #74050 05-06-2008 06:47 AM
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Wow! Thank you for sharing your story. Right now dad is in the hospital for a staph infection from the needle lung biopsy he had done on Friday. His fever was 103 and blood pressure was 91/50.
EzJim, how big was your tumor?


Daughter of father (71) who has SCC in cheek, hyoid bone and lungs. 3 X paclitaxol and carboplatin every 21 days.
Missymoo #75341 06-08-2008 06:42 AM
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Hello,
A quick update on dad, he had two chemos for the golf ball size tumors in his tonsils and cheek (SCC) He does not get sick or tired from the chemo, in fact, after sitting in the infusion chair for four hours he went out to eat with friends. His WBCs are always great, his energy is fantastic, he played three games of volley ball last week.(72) The best thing here is he has no evidence of the tumors, they have melted away. That monster in his mouth is now a empty flap of skin where the tumor was bulging.
My dad prayed to God for more time here, it looks like his prayers are answered.


Daughter of father (71) who has SCC in cheek, hyoid bone and lungs. 3 X paclitaxol and carboplatin every 21 days.
Missymoo #75342 06-08-2008 07:53 AM
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That's fantastic news. Let's hope all his future exams are unremarkable.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #76180 06-25-2008 06:16 PM
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Hello,
A quick update on dad showed that the SCC in his lungs has disappeared. The CT scan shows a few small nodes in his face that they will continue to battle with chemo.


Daughter of father (71) who has SCC in cheek, hyoid bone and lungs. 3 X paclitaxol and carboplatin every 21 days.
Missymoo #76185 06-25-2008 06:39 PM
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what chemo drugs and how many times a week is your dad getting

Thank you victor


Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
victor53 #76188 06-25-2008 07:07 PM
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Hello,
Dad is getting paclitaxol and carboplatin, he gets chemo every 21 days.
Where was that lemon sized tumor that was so large? My husband had a mediastium tumor with lymphoma that was eight by ten by eight. Two chemos for him and it melted away. This August he will be in remission for one year.
I am hearing a lot of great cancer survivor stories lately, they have come a long way with these new cancer fighting drugs.


Daughter of father (71) who has SCC in cheek, hyoid bone and lungs. 3 X paclitaxol and carboplatin every 21 days.
Missymoo #76197 06-26-2008 06:26 AM
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Missy,

It would be helpful to us all if you could modify your signature line to include your dad's treatment history. For instance see mine below my name.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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