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| | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) |  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Sophie there is no need for thanks,it was the least i could try to do to help,i was just concerned you hadn't seen the message.As for the swelling,i have to just say that robin's whole face and lips swelled up to huge proportions,and his treatment was 8 mg perednisolone in the morning.this reduced the swelling after 24 hours,it was unbelievable.The minute they tried to reduce the dose the swelling started to come back.Why cant you take it for more than 5 days Sophia?.Rob was on it all the time.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jan 2008 Posts: 41 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 41 | thanks for telling me that, today i have to see my Dr. and i am going to ask him. if this an option for me it would be great, because this swelling is so unbearable!
sophia
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Sophia,
I am praying that the information from Liz will help you.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | You're in my thoughts and prayers too, Sophia. I am praying you at least get some relief from the pain and discomfort.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jan 2008 Posts: 41 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 41 | you are all so caring & sweet. thank u very much. my Dr. doesn;t want me to take cortisone each day. i had some blood tests done today that showed very high levels of transaminases maybe cause of these pain killers that i get. tomorrow i would try to do another chemo hoping to reduce the size of the tumor. i'll let you know how it went. all your prayers, all your support, your advice are so important and very much appreciated. thank you all, and i hope the best for all of you.
sophia
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