#74777 05-23-2008 08:47 AM | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | tuesday 8am they are taking out all my top teeth and 3 bottom ones. Then thursday at 11am 2 days later they want to put in my port and peg. then start me on chemo the following monday 4 days later. Induction Chemo 9 weeks of taxol/carboplatin/ Erbitux. Then 2 weeks rest then 8 weeks chemo and radiation. Then 4 weeks rest then surgery. I thought i would need 2 weeks for teeth gums to heal but maybe that is just for radiation and it will be alright for chemo to start 6 days later/ 4 days later after peg and port operation. Doctors screwed around and did nothing for 7 weeks now their rushing me i think. But i know i do need to get into treatment as fast as i can. Thanks Victor Brown
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Good luck Victor. Have a great Memorial weekend. Do everything you can to enjoy everything. Eat what you want and DO throw caution to the wind.
We'll be here for you every step of the way and that's a good thing to have in your corner.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Victor - good luck to you as you prepare to start your journey. I think mentally this is one of the toughest times. Re: your question I believe that the healing should be done prior to radiation - don't think it is bothered by chemo. If this is wrong - will someone please let us know so we can learn something.
I will tell you this - the most valuable piece of advice my husband received, but the hardest to follow - was to EAT LIKE HELL at this stage and gain all the weight you can. Please try and do that over this holiday weekend.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Vicotr, It won't take you much time at all to heal from the PEG and port surgery (though you may find your stomach muscles hurt for a few days after getting the PEG) so that won't be an issue with the chemo.
I think the two weeks they talk about is for before radiation healing from oral surgery because the radiation can really disrupt the healing process in your mouth. Chemo can also slow down healing, and if and when it starts affecting your white blood cells, can make you more prone to infection. But that doesn't happen right away as soon as you get chemo. My white blood cell count didn't start declining until I think about a week or two after my first chemo. Even if the same happens to you (and it doesn't always happen), by that time your mouth should have healed pretty well.
Like David, I hope you really enjoy yourself this weekend. Eat like there's no tomorrow. There will be a tomorrow to eat and enjoy your food again, but it may be a while!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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