Previous Thread
Next Thread
Print Thread
#74753 05-22-2008 06:02 PM
Joined: Jul 2007
Posts: 20
Member
OP Offline
Member

Joined: Jul 2007
Posts: 20
This is difficult for me to talk about but, I need some help with this. I had my surgery last September and have healed up nicely. I had a PEG tube placed prior to surgery and have been on it ever since. I lost 2/3 of the base of my tongue, had several set backs, so it's taking a lot longer for me to conquer swallowing. My problem is that over the last couple of months I started having a yellowish discharge anally that burns like acid. I had pneumonia for 5 weeks starting the end of Jan and was on and off antibiotics several times. I thought that had killed off all the good bugs as well as the bad ones in my gut. So I tried Probiotic drinks down my tube. That worked for about 6 days. Then back to the discharge. I have silent reflux and take a liquid scrip for that. So I thought maybe I needed something stronger. The nurse practitioner gave me samples of Prevacid which helped for about 3 days. Today I had one of the worse episodes I've had so far. On a scale of 1-10 the pain was a ten. It burned so badly I could hardly walk. I do have an appt with a Gastro doc but not until 6/3. It's almost impossible to get in to see these guys. Has anyone out there had something like this happen to them? I'm desperate for an answer. Thanks for any help. Katie

Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Kate,

I hope you get the answer and it is horrible how sometimes we have to wait for an appointment. I'm sure you have tried to explain your pain level but maybe call them everyday to see if someone has canceled may help. Are there any other doctors who may be able to call this doctor to get you in any faster? Be the squeaky wheel.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,928
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5