| | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | It hurts like he!! but I used a fairly warm wash cloth and soaked my neck then used the silver sulfadine and the aquaphor. It helped but I had to take off work for a week because I couldn't wear a shirt....plus I looked so bad I didn't want to scare anyone. Once I stopped rad treatments, I was almost back to normal in two weeks.
Last edited by GaryG; 04-08-2008 06:27 AM.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | | | | Joined: Dec 2006 Posts: 2 Member | | Member
Joined: Dec 2006 Posts: 2 | I guess eveyone is different. I used pure aloe lotion (you have to make sure it's only aloe, no alcohol or anything else) which I still use. Never had any problems. | | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Some of us are fortunate enough to have nothing more than a mild sunburn from RT so if you are following this thread and haven't started treatment yet don't freak out. The RO department gave me some samples called "Radiacare" and it worked fine for me. http://www.amazon.com/RadiaCare-Gel-Hydrogel-Wound-Dressing/dp/B000BF5JEQ If you decide to buy this use the OCF Amazon link. Ask the nurses unit if they have samples - I never had to pay for mine. One thing I must stress - DO NOT have anything on your skin during radiation. Clean and dry skin is key. Many creams and lotions can have a "bolus" effect and intensify the skin damage.
Last edited by Gary; 04-08-2008 10:19 AM.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Mar 2008 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2008 Posts: 28 | Thanks everyone. My dad switched to Aquaphor and each day, now, he gets seen by the radiology nurse who wash his mouth and apply radiagel, which he finds soothing.
GEO
Anxious caregiver.
Squamous cell ca cheek/jawbone/mandible/Stage IV positive lymph nodes.Surgery, Jan 08. Removal of cheek,removal of lymph nodes.Currently undergoing week4 of radiation treatment--to receive 33 treatment in all.Takes Fenyl patch and hydromorphine.
| | | | | Joined: Apr 2007 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 27 | My RO prescribed a moisturizer cream called Xclair that I liked a lot. It absorbed quickly into the skin and wasn't greasy. I believe Xclair is made in he UK. My RO warned me that it was expensive, not all pharmacies stock it, and insurance probably wouldn't pay for it. A local pharmacy (Elephant) did stock it and my insurance (Aetna) did pay for it.
Later, immediately after treatment, when I developed a bad radiation burn I found the grease in Aquaphor helpful.
marilyn
dx: Stage 3 T2N2aM0 Left tonsil, base of tongue, 1 left node. HPV positive.
tx: Tonsilectomy (left) then Cisplatin x2, Erbitux x7, IMRT x35
Phase 3 clinical trial. Completed 6/28/07
| | | | | Joined: Mar 2008 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2008 Posts: 28 | I'll keep that in mind. So far aquaphor and the radiagel is working well.
Thanks everyone.
P.S. My father skin became worse not really just because of radiation but because he applied plain aloe (actual plant) to his skin, which felt soothing at first, but burnt him the next day (Sunday).
Anxious caregiver.
Squamous cell ca cheek/jawbone/mandible/Stage IV positive lymph nodes.Surgery, Jan 08. Removal of cheek,removal of lymph nodes.Currently undergoing week4 of radiation treatment--to receive 33 treatment in all.Takes Fenyl patch and hydromorphine.
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